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Transplants | Last Active: May 16 1:00pm | Replies (441)
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@jeanne5009 With such a low MELD what symptoms do you have, and how was it caught so early? Maybe if you are lucky it will never get to the point where you do need a transplant. The mother of a woman I know had cirrhosis for 10 years and was fine with it.
You mention the shingles shot in a different post. The reason I am not supposed to get it has something to do with my immunosuppressants and of course you are not on them yet. I know that Mayo says it's OK to get post-transplant but MGH, my transplant center, is still being very cautious.
JK
Replies to "@jeanne5009 With such a low MELD what symptoms do you have, and how was it caught..."
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@jk volunteer mentor
Found it on bloodwork at my Medicare 65 check up. Further tests and a biopsy confirmed Stage 4 Cirrhosis. I have a lot of connections to causes but now they say it was likely due to NAFLD and progressed to cirrhosis. Im a carrier for hemochromatosis and recent tests indicate auto immune hep. I am very gradually deteriorating. I have mild HE and varicies. No ascites thank God. Going on 4 years now and have tons of symptoms but nothing like what I hear about. Mayo evaluated me and said I was too early so they watch me. I go for tests and blood every 6 mo. and my local Drs. send them reports. Not sure why the Meld score is so low but Im not nearly as sick as most of you. Im very pro active and enjoy learning all about the amazing human body! Very lucky too!