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Hello everyone! If you are in the Midwest, I hope you are staying warm today. Our temps here in Minnesota are reaching record lows this week. If you live here or are visiting Mayo Clinic, be safe when traveling around or going outside. Days like today, we offer high praises to the person who designed our skyway and pedestrian subway system so our patients and employees don't have to go outside to get from place to place.
Today's blog post is helpful for anyone who has a local doctor and a transplant doctor. The partnership between any number of doctors who are caring for you is an important part of your treatment success. At Mayo Clinic, we partner with your local care team to ensure that your transplant care is understood and carried out by anyone who is part of your medical team. Local physicians are critically important in providing us with information about your medical situation when you seek care locally. Communication is key to a successful life after transplant.
https://mayocl.in/2G97jSQ
Have you experienced good communication with your care teams? And what part did you play in helping this communication to take place?
Stay warm and have a great week,
Kristin
Replies to "Hello everyone! If you are in the Midwest, I hope you are staying warm today. Our..."
My local hospital, my nephrologist in Sioux Falls and Mayo Clinic all use the same software system. My PCP and my nephrologist have both told me that they can access all my reports and test results at Mayo. I need to find out if Mayo can access my information at my local hospital. Haven't had my transplant yet. Hopefully sometime this summer. But my entire care team should have access to everything that is going on.
@keggebraaten my situation is a little different. My transplant journey involves 2 different centers. The first is one I won’t name and the second is Mayo in Rochester, MN. I had a pancreas transplant in 2005. I was satisfied with the pretransplant evaluation. The transplant itself was fantastic. It was like my own personal miracle. Unfortunately as time went on (after about 3 months - a year) the follow up turned out to be really lacking. My local providers were & are great but I struggled along with very little involvement or support from the transplant team. In 2016 I was having some serious decline in kidney function and I met criteria for kidney transplant evaluation. I ended up going through evaluation at the previous facility and also at Mayo. I was approved and accepted for transplant at both centers. I chose Mayo. There’s no comparing the two because the difference is amazing. Mayo is thorough, detailed, has stellar organization & communication & hopefully great follow up. There is good communication between the Mayo team and my local providers. I only wish the Mayo team was monitoring my first transplant because I’ve lost confidence in the previous center. I pointed out that I heard that “once you become a transplant candidate at Mayo, you become a lifelong Mayo patient”. Unfortunately I guess that principle is not retroactive. I wish!
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@keggebraaten I had my transplant at Mass General Hospital (MGH), and live in southern NH. The name of my PCP is on all of my reports from MGH, and they respect the role of the PCP and will not “step on that doctor’s toes”. MGH handles anything related to transplant, and if a medication is prescribed for me I check it with them, but any other exams and tests they defer to the PCP.
Anytime I go to MGH they FAX reports from my visit there to my PCP. My part was simply to make sure they had the contact info for my PCP. They even called on the day that I had my transplant to keep him totally in the loop. Any of my doctors up here in NH also FAX their reports to MGH.
I like that they do not try to play God and think that only know all the answers, even though I am sure they do and would step in if they were concerned with a treatment prescribed by a different doctor.
JK