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Transplants | Last Active: Dec 13, 2024 | Replies (446)

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@contentandwell

@gaylea1 HE episodes are the worst. For me, feeling like I was out of control of my mind was absolutely horrible. As I mentioned, my first was very minor. I always went to the local hospital for them, and they knew nothing there. If possible I would have gone to Boston, to my transplant center but the ambulance cost would have been prohibitive, and when I had one of the episodes that sent me to the hospital there is no way my husband could have driven me to Boston.
So you knew you had cirrhosis prior to your first HE episode. I didn't know I had cirrhosis until almost a year and a half later.
I am sure it will work out for you, and with a MELD of 30 probably pretty soon. May I ask what region you are in? I hope it's not one where the MELD scores tend to be much higher before a transplant. When I had mine, Boston was in the low 30s but currently it's at 28 which is exactly where I was.
I'm glad you are trying to stay fit, I am sure that is a huge help in your recovery. About a month after getting my new liver people were amazed at how well I looked. You will too.
JK

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Replies to "@gaylea1 HE episodes are the worst. For me, feeling like I was out of control of..."

@contentandwell Actually I did not have a diagnosis for cirrhosis until during that first bad HE episode. Looking back though I had several pretty bad episodes but didn't know why. I wouldn't go to the doctor or hospital. The last really bad one when I was finally diagnosed I fought my husband and he had to get my daughter over to convince me I needed urgent medical care. I don't remember the ambulance drive or the following 4 weeks.
I am not actually in a region I live in London Ontario which just happens to have one of the best transplant clinics in Canada. My score is borderline high for this area. Not quite critical but still pretty s8ck.
The fear of another HE episode keeps me on the straight and narrow.
I've been stuck at home the past 2 years as they suspended my drivers license. No buses my way and taxis are astronomical.
I can't wait to start my new life.