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@rosemarya and all, I think any caregiver would be helped by this. Our caregivers most often give it their all, it's not easy for them either. When I was going through all of this, the biggest problem was the possibility each day that I might have an HE episode. Thankfully my daughter did come and stay with me a weekend so my husband could go to CA and visit our son for the weekend -- they have a tradition of watching the Superbowl together.
I was talking to my son last night and all of this came up. We both agreed that I did very well dealing with everything except for the constant fear of having an HE episode. He also is amazed that my doctor did not diagnose me considering all the symptoms I had.
JK
This is the kind of information that my husband, my caregiver, would have appreciated during 'our' journey to transplant.