Connect
← Return to New Transplant Blog Posts
Discussion
Comment receiving replies
I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!
Replies to "I have not posted for a long time but I have been following discussions when I..."
@jolinda, I am happy to welcome you to Connect. It is an honor to meet you and to greet you first thing this morning! As a recipient, myself, I know how much your words of encouragement can mean to someone who needs a transplant. Your amazing story is proof that miracles do happen! Thank you for sharing it.
I want to invite you to read and to participate in any of our discussions. Feel free to join in and ask a question, make a comment, answer a question.
Jolinda, How long ago did you receive your kidney transplant?
Rosemary
@IWantToBelieve I am not familiar with GFR but I presume it is similar to the MELD for liver function. What is the range of numbers for GFR and if you are waiting for a cadaver donor what number is generally where transplants occur?
JK
Connect
I'm so glad you took the time to update everyone. I too had PKD and I understand that it can be especially difficult to find a donor. I was blessed to have a lot of potential donors but many were disqualified for various reasons and was losing energy and hope as my kidney function declined. I was reluctant to tell people because it was hard to deal with and I didn't feel worthy. I happened to mention I was sick and needed a kidney to a coworker and she immediately asked if she could donate. By some miracle we were a match and 6 weeks later we were in surgery. I was able to have my PKD giant kidneys removed at the same time I got my new kidney and have been healthy ever after. Hope it out there!!! Keep the faith and know good things will happen. Prayer helped me cope during the helpless, lonely times. Good luck and keep us all posted.