Any Lyme disease sufferers out there?

To those who question the validity of Lyme, please read the articles John included in his post! And that of others who have learned to survive with Lyme!
THANKS,
SUNDANCE aka RB

Thanks for the info. No, I haven't. I tested positive for ANA's but nobody can tell me what I have.

It's frustrating to say the least.

Sundancerdb78, Hey There! I have a dear fried who has severe Lyme Disease with mold toxicity. He went to a Lyme Disease Center in Florida that helped him greatly. I will get the name if you want me too. It was out of pocket.

I must say, they saved his life as he was in such bad shape. He also had been told there was not such thing as Lyme Disease in his state. This disease has reeked havoc on his body, but, I will say they helped him there.

Praying for you this a.m. Blessings & Prayers....

I've had a cousin diagnosed. She has now died from it. A former neighbor is homebound because of it. Both had trouble finding a correct diagnosis, had to search doctors and listen to absurdities ("It's all in your head" See a psychiatrist. ... and more)

B-MOM, Sorry for your loss! Can I ask how she died? What were her finial symptoms?
I have lost over 30 lbs. But I still eat! My vision is detartrating, My energy level is going down! Have trouble walking both physically in endurance and balance. Constant Brain Fog! Many other symptoms!
I guess I shouldn't complain! My parents only lived until 68 and I am 79!
Have played golf for 70 years all around the world! Fished some Great Trout Waters for 70 years! And skied some Great Mountains for 50 years!
I guess what I am saying is Yes Lyme is a Horrible disease! But I have a lot to be Thankful for!
BLESS YOU ALL!
THANKS!
SUNDANCE aka RB

Thanks for the info!
Have a good last week of vacation!
SUNDAANCE aka RB

Thanks and Blessings to you!
RB

I just learned that my lyme test was positive but boy did I have a time trying to deal with it with people that don't understand how to handle it in the medical field I got it last month on the 23rd.

I have (had?) Lyme. Your symptoms sound like my sister’s symptoms. She died at the age of 35. She was diagnosed with MS, not Lyme. MS does not usually kill, nor does Lyme actually. She and I did the same activities that had me catch Lyme in my youth. Lucky for me, I was diagnosed with RMSF (Lyme was not known of at that time) and given some treatment which may be why the course of my disease was different. LYME and MS are sometimes confused by GPs. Luckily (Yuck) I had the tick still embedded in my skin when I was diagnosed.
In my late 30’s, I trusted my gut (that I did not have Lupus and only 5 years to live according to a doctor) and was lucky enough to see a doctor who knew Lyme. I went through 4 GPs. I spent a year on doxycycline and probenicid and was “cured” or it is in remission. That was 4 decades ago
Now that I experience advanced age, I see symptoms common to aging and Lyme, but there are a lot that are not common, although they may be subtle. For instance, in my youthful symptoms was erythyma nodosum, which gives you “bruises” on your shins. My mother (who was not very nurturing) said I was just clumsy and kept bumping my legs which I knew was not the case, but when this appeared during pregnancy as an adult, I knew something was going on. My list of symptoms is long including facial paralysis, ANA results, heart rhythm irregularities, arthritis that was not arthritis, on and on.
Keep looking for help. The Lyme Association (name?) in the US can probably help you find someone knowledgeable in your area.
PS. The “cure” was not easy. Those bugs do not want to go. Look up Herxheimer reaction. My Herx happened at around 5-9pm daily for weeks (months). May not be the norm.
PPS. My Lyme tests, back in the day, never came up positive but my ANA went back to normal after the long treatment.