Thanks @kequick and @keggebraaten for sharing a kind word about us to our physicians! We will be looking forward to meeting and supporting those patients.

I remember my confusion and fear when I was learning to manage my medications for my new organs. I can assure you that it does get easier over time as it becomes a normal part of your new life.

I chose to get my medications thru the Mayo Specialty Pharmacy. They check in with me on a regular basis? They ask me: If I have any questions about my medication; if I am able to follow my prescribed medication schedule or if I would like some help; if I have concern about being able to continue my medications in the future. I am happy I did this (and my insurance does cover it) because my local folks do not know much about my anti-rejection meds.

I like to sort my medications weekly. I also purchased a pretty pill box that I can carry in my purse for special social events! -just for fun:-)

Whether you are a recent recipient, or a not so recent transplant recipient, What are some suggestions or questions that you have experienced?

Rosemary

@rosemarya I get my immunosuppressant through CVS Specialty Pharmacy in Boston. MGH of course does have a pharmacy but I suspect they deal with CVS because CVS ships the drugs to the patient. They were shipping them to my home but that was a bit of a pain to have to schedule a morning or afternoon at home to be here to sign for them so now I have them shipped to a CVS right here in town.
I have one of those weekly pill containers and I purchased some little pill bags at Walgreens that I use when I need to take the pills with me. They are very convenient. I know I mentioned this before, but I don't know what I would do without my alarm on my phone to remind to take my pills. This morning I had my pills with me but I know I would have forgotten to take them if my alarm had not gone off. I was heading to my health club so I had water with me to take them.
For these pharmaceuticals, Medicare covers them, not regular prescription coverage. I have no idea why this is so, but it is.
If someone is "sharing a kind word about us" to our physicians I wish they could to my PCP. 😉 I think he doesn't like me much because I ask questions and he must realize that I feel there was no excuse for him not diagnosing my cirrhosis for a year and a half. As more time goes by and I learn more about symptoms I realize even more that he blew it. From what I have been told a doctor of internal medicine should have been able to diagnose me. I think the fact that I looked good caused them him/them to assume it was not physical.
JK

@kequick I have this printed out! It is very helpful.
JoDee