Anyone have any success with going to an LC clinic?

I'm in my fourth year with Long Covid - I have been going to Stanford's Long Covid Clinic and have been very disappointed - Pleasant docs but offered no help - Tried Naltrexone which helped nothing - I read a book by Dr. Carla Kuon from the Long Covid Clinic at UCSF in Emeryville, CA entitled The Long Covid Solution: A holistic integrative approach to Post-Viral Recovery - It is dizzying to read - So much information with lots of recommended supplements etc - I'm still combing through it to see what I might feel would benefit me - I won't take everything she recommends - A doctor friend recommended Mayo Clinic's Long Covid Clinic - His brother went there and said he got some help, but I haven't been able to connect with him yet to get the specifics

Where do I find the book you are referencing.

@theressa, at Mayo Clinic, there are several specialty clinics, like the long Covid clinic, EDS Clinic, Fibromyalgia Clinic, Pain Rehab Center and others, that evaluate, diagnose, and outline care plans for patients to follow at home. For long Covid, people experiencing sequelae of COVID-19 work with a team of physicians, nurses, subspecialists, and integrative medicine experts to assess, treat when necessary, and assist with improving overall functioning and quality of life.

I'm sorry to hear that your experience fell short of your expectations. Please be assured that Mayo Clinic would want you to feel comfortable and confident about your care and your time at Mayo. I’d encourage you to share your experience with the Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036 (toll-free)
Email: opx@mayo.edu

Staff are available to discuss comments or concerns you may have regarding communication and coordination with local care. Your experience sounds like something Mayo Clinic would want to act upon.

FYI - I just recently reached out to Mayo in Jacksonville, FL since it was at least in the same state as I am and got a response that Mayo has now closed this clinic. 🙁

In my research I have found some mentions of a possible LC clinic out of University of FL but have not reached out to them yet as it seems to be hit or miss as to whether these clinics do more than my local docs are doing, which is basically treating things as they come up...

I downloaded it to my Kindle from Amazon - I'm quite certain a hard copy can be had from Amazon and perhaps some bookstores -

Sounds like you had a different experience, which is great. Maybe my experience was terrible cause I am Black and it is proven that Black Americans are treated differently and worse than White Americans when receiving healthcare.
The Mayo neurologist I saw didn’t order any tests and complained that the medications that the lc clinic put me on were incorrect and causing my problems. He lectured me on the medications.
The gastroenterologist told me to take Metamucil 3 times a day and to have a colonoscopy. The Mayo colonoscopy gave me
Sepsis and I almost died. I was in the ER and local hospital within 12 hrs of the Mayo colonoscopy. My experience with Rochester Mayo was terrible. The insurance company had to assign a nurse to make sure that I got better care after I had sepsis. I couldn’t find a doctor, (mine had moved) so I paid $3,000 out of my pocket for concierge medical care.
Also, the research paper that Mayo doctors wrote about long covid is chauvinistic and blames women with long covid for having long covid.
The virtual appt with the psychologist was also troubling. They told me to use google to find a therapist. There was no follow up from Mayo.

PT also lectured me that I needed to get together with family. My family is 2,000 miles and I have to pay for flight, food, hotel, rental car, etc. to see them. I would love to see them more often, but it isn’t realistic. She didn’t even ask me if I had family nearby.

When did you participate in the Mayo LC program? What city did you participate in?

I am sincerely glad that you found the program to be helpful.

Warmest regards -

I’ve read that a large observational study of U.S. adults aged 50 and older found people who had COVID-19 were 15% more likely to develop shingles within six months, and that the risk went up to 21% for those hospitalized with COVID. Is this real, and is it something clinics are actively addressing when treating or monitoring patients with shingles or post-herpetic neuralgia?

I’ve read that a large observational study of U.S. adults aged 50 and older found people who had COVID-19 were 15% more likely to develop shingles within six months, and that the risk went up to 21% for those hospitalized with COVID. Is this real, and is it something clinics are actively addressing when treating or monitoring patients with shingles or post-herpetic neuralgia?