Connect
How are you managing long-term effects of pelvic radiation?
Was diagnosed with vulvar cancer stage 1b 1.5 years ago. Have been cleared but suffer from side effects from pelvic radiation. Doctors don’t talk about the side effects of radiation after treatment is over. Developed rectum prolapse as a result of my pelvic muscles being weakened. Can anyone share their dude effects if any?
Like
Helpful
HugInterested in more discussions like this? Go to the Gynecologic Cancers Support Group.
Connect
Did they try a different regime of chemo? I guess I was very fortunate because I had 6 rounds chemo and immunotherapy and wasn't sick at all. I had weakness about days 4-7 or 8 afterward and bone pain but it wasn't something pain meds couldn't handle. My post op appt is this coming Tuesday, Sept 2nd, and I'm going to need more chemo I'm sure. Total hysterectomy, robotic assisted. So far healing is going very well. Hope you find solution for your issues. ❤️
-
Like -
Helpful -
Hug
2 ReactionsThank god we have each other to talk to!!
We are in this forum to share our feelings, be heard & and to support each other in whatever way we can! Thank you all❤️
-
Like -
Helpful -
Hug
2 ReactionsAs a six year vulvar cancer survivor, you will probably not like my comments, but here goes…
1. are you still alive?
2. is your cancer in remission?
3. which would you prefer, discomfort, pain and side effects or not being alive?
I have a male oncologist who saved my life, he did what he had to do some I would celebrate 6 years cancer free.
Yes, I had 8 sessions of chemo and 35 radiation treatments, but you what, I’m still here!
Yes, I have many long term side effects from the radiation, but I try to help myself by eating the right foods, being proactive with my health.
No, the side effects aren’t fun, diarrhea, itching, tenderness and the list goes on.
How many of you have joined the Mayo Clinic Women of Teal support group online? It is a great way to virtually talk to other women with gynecologic cancers. It’s a place to share and learn. You all might want to check it out and participate.
Look for cancer support groups in your area, you’ll be surprised at what you find.
Long story short, yes all of our worlds changed, but we’re still here. Unfortunately, doctors can’t tell us all of the side effects we will experience, because each one of us is different.
I only hope you will find the side effects are a small price to pay to still be able to enjoy your life
-
Like -
Helpful -
Hug
3 ReactionsYou are so right! Please understand I thank god & pray each night and hope to find peace with the changes in my body & life.
I am very thankful to be vulvar cancer free but need to learn how to live with the fear it may return. I do have side effects that are now part of my new life. But yes, I am still here & live for my family! My family is my life ❤️
-
Like -
Helpful -
Hug
3 ReactionsI have been fortunate to have oncologists who have been very thorough in educating me on the possible side effects but it still stinks to have them. Will second the Wonen of teal on line support group
-
Like -
Helpful -
Hug
1 ReactionJust curious what if any side effects you might have. Mine are mostly vulvar skin issues. Skin was never the same. Tenderness, itchiness & some inflammation. Do you or anyone experience the same?
-
Like -
Helpful -
Hug
1 ReactionCan you share what late side effects you may have & what helps?
The most annoying has been related to chemo not radiation with the neuropathy.
I have all the same after effects. I was told this is my new 'normal'. I use a steroid cream for flare ups. Good luck!
@bobette1 Good to "see" you back here! Does the steroid cream work for you to quiet down the side effects? Or is there still some inflammation and itchiness?