Juvenile epilepsy

Posted by sg325 @sg325, May 23 6:32pm

Hello. My 14 year old daughter has experienced two convulsive seizures and daily myoclonic jerks/ twitches. She has been taking Keppra and her symptoms are controlled but her moods are so extreme it’s like she’s a different person.
She is not willing to switch medications because the doctor has warned of increased seizure risk during a transition. Does anyone have experiences to share? Thank you

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

terin82 | @terin82 | 2 days ago

In reply to @lisalucier "Hi, @terin82 and welcome to Mayo Clinic Connect. I wanted to let you know I moved..." + (show)

We upped his med, I believe he didn’t have enough in him to make it to the night time med dose. He had a seizure at 845 and next dose wasn’t until 10. Hopefully med increase will help. 🤞

Leonard | @jakedduck1 | 2 days ago

@terin82
All these suggestions may be long shots but they may be helpful.
Taking extended release, formulations of medication may be beneficial.
My seizures were uncontrolled until I started taking extended-release medication's.
My last Neurologist didn't believe in giving immediate release seizure medications to patients.
Whenever getting medication refilled if genetics are being used it is best to use the same manufacturer with every refill.
Take care,
Jake

Chris Gautier, Volunteer Mentor | @santosha | 2 days ago

Hi @terin82
I also started having seizures around the same age due to hormonal changes. I remember how distressed my mother became watching me have focal seizures (auras and some absences later), especially when she struggled to get proper care from the many doctors we consulted. This situation was certainly not easy for my mother to deal with, so I understand well how you feel.
Does he have tonic-clonic seizures immediately, or do those episodes start with some absence that evolves into a tonic-clonic seizure? What kind of tests has he already had, and what type of specialist is currently treating your son's epilepsy?
Please remember to take care of yourself too!
Chris

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Leonard | @jakedduck1 | 1 day ago

@terin82
Would you mind sharing the previous and current dose?
Jake

terin82 | @terin82 | 1 day ago

In reply to @jakedduck1 "@terin82 Would you mind sharing the previous and current dose? Jake" + (show)

. Now he takes 1.5 pills; 1125mg am and pm, it was one 750 mg am and pm of keppra

natb23 | @natb23 | 2 hours ago

Thank you for this! I was meant to see this comment today!

My 13-year-old had his first seizure 8/4 and a second 1 week later. We started on Keppra, then moved to ER Depakote. I am not doing well. I don't want to let him out of my site. Poor kid just wants his freedom back.