@natb23
I'm sorry to hear about your son's seizure disorder. The journey to achieving seizure freedom can be long and challenging for some, while others may never find it. I hope your son's doctors can find the right medication or combination of drugs to manage his seizures, or that they may resolve on their own.
I was around your son's age when I developed epilepsy in the late 1960s. Over the past 60 years, I've experienced more than 13,000 seizures, primarily Tonic-Clonic seizures, as well as absence seizures and both focal aware and focal impaired seizures. At times, I've been put into extended induced comas due to status epilepticus.
There are common-sense restrictions that you might be aware of, which may or may not apply to your son's situation. If you're experiencing stress or difficulties coping with your son's epilepsy, it's essential to manage any stress or anxiety, as your emotions can directly affect your son's development.
Encourage your son to live as fully and independently as possible. While safety is important, it shouldn't prevent him from engaging in normal activities. Being excessively protective can negatively impact a child's self-esteem, social development, and overall quality of life. By promoting independence and encouraging typical activities, while also establishing a seizure safety plan with family and friends, children with epilepsy can acquire essential life skills and lead fulfilling lives.
There was a study done at Stanford University that showed some patients have seizures when taking drugs from different manufacturers so the study recommends getting the same manufacturer with each refill. they also recommend if you're on a brand-name drug don't switch to a generic and vice versa. Why seizure stopped after 45 years when a new Neurologist had to change my medication because my previous one became unstable. He put me on an extended-release version of Carbatrol. In fact, my last Neurologist refused to give generic seizure medication's to patients unless there was no way around it. He strongly believed that seizure patients shouldn't take immediate-release medications if possible.
What type of seizures is your son having, generalized or focal?
Do you know his diagnosis?
Take care,
Jake