Severe chronic back pain

Posted by shooshoo7073 @shooshoo7073, Apr 13 10:00pm

Severe chronic back pain…I’ve suffered for years and have been told different things about my back pain, I was told taking weight off would help ive last 50 pounds and no relief if anything it’s getting worse. I’m having a hard time doing basic things without being in severe pain. I’ve done massage Acupuncture physical therapy serval times. Now I’m just frustrated about even going to the doctor cause nothing changes. It hurts to even walk and my big toes on both feet are numb. What should I do I’m losing hope and I don’t know how much more pain I can handle. Please help

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Profile picture for lawb4me @lawb4me

Stop telling people to get a stimulator! I've heard so many more people complain about how much worse it made their back and that they would get electric shocks out of nowhere because of the way they moved. I've also heard a lot of people say that once they got it and planted it was hard for them to find a doctor that would take it out

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It's definitely not for everyone. What's good for you may not be a good fit for someone else. I myself speak from experience. I had a stimulator trial and even met with a nurse from Boston Scientific. I had my pain doc take it out within the trial period. I've done all the things except pain rehabilitation which Cleveland Clinic referred me. I've done lifestyle changes over the past 15 years. Had a surgery and will need to revisit; Really that's my only option unless a new technique comes about.

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God bless! I hope all goes well! Attitude is EVERYTHING….& prayers! ….
Say the Serenity Prayer…..

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Profile picture for dawnj @dawnj

Well I'm in tomorrow so my fingers and toes are crossed and all we can do is take painkillers and get on with our life's good luck to you

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God luck & God bless! I am here for you if you need/want to vent!

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Profile picture for loriesco @loriesco

Hi there! Let’s look at “defeated attitudes” and work with that first. My attitude was adjusted when I walked into a pain management doctor 15 years ago (after an additional 15 years of suffering) and I sat next to a man who had a complete marvel exoskeleton outfit on! Every bone in his body was compromised. He was only middle-aged. I was so thankful that I was me and not him. Let’s talk about the 30 years I suffered with a bazillion, different arthritis. My Doctors never looked at gout, which was a simple fix and should’ve been considered in my suffering when they ruled out the RA and told me the OA was responsible for my pain and my autoimmune type reaction. It wasn’t— it was the gout. They didn’t find this I did. it was because I was here with this group. I am an overachiever and I promise you every day I would look for things and I guess God didn’t want me to find the gout for 30 years. Maybe so I could be an inspiration to others here.
Let’s also talk about the opioids. 30 years ago, the military ibuprofens me into the hospital with an allergic reaction because they kept upping the dosages on my little body to the point where I had an allergic reaction. I had the worst withdrawals from over-the-counter ibuprofen. I always tell people never take it unless you’re in like a crisis where you’ve thrown your back out and your muscles going to spasm and you need it for three days. But that’s it! start tapering off after the three days. so after I was released from the hospital and the attending doctors told me never to take ibuprofen type medicines again. The military agreed to put me on the opioids. I have pain in my lumbar tailbone area That is exacerbated by barometric pressure change. They can’t do anything about it or they won’t. I did my research and consultations. removing tailbone is not recommended. So I accepted what life threw at me. I always believe there’s the good with the bad: so the bad news is that I am on low-dose opioids - during a timeframe where it is made political, and I have been humiliated on several occasions. Every year I have to pee in a bottle and take blood test. It is a small humiliation to pay for being able to live my life on my terms!

What I have learned is that the opioid will mask the pain such that I can exercise gently on a stationary bike walking and stretching over the course of the day. This is critical because I’ve had more than several spine and joint replacements and the muscles after surgery around those areas atrophy and they must be made strong again. And how can I be expected to make them strong if I can’t tolerate any movement?? So the good news is that the opioid manages the pain so I can do the necessary exercise.

I am 68 and bouncing around between surgeries and recovery is definitely a balancing act when one has degenerative bone diseases and my muscular problems. I recommend MFR my facial tissue release. there is a section here you can learn about it. Like one of my doctors told me in 2007 when the Darvan was removed off the market and I was in sheer terror “don’t worry there are 1200 pain medicines that we can try.“ I keep a small pharmacy of everything from Vicodin to morphine under my bathroom sink to remind me I am NOT an addict! After less than 10 tries, we landed on the Percocet. Every once in a while, I test myself and I am not addicted. I just need to mask the pain so I can do the other things I want to accomplish in life.

After about 15 years on the Percocet, I finally had a reaction/irritation in my bladder and I think it was because the every day use of the Tylenol. So I switched to the OXY (same dose) and that fixed the irritation! I wasn’t as panicked this time around.. I can’t tolerate most medications, I am very medication sensitive, I’ve tried all the nerve medications. I don’t know what I would do without the low-dose opioid that I do take, which helps me feel good enough to do my exercises. I am with a great Doctor Who is supportive and we navigate the political issues together.

Another recommendation is that you have something else important in your life. That is important enough to make your physical ailments take a backseat. On bad days I do not want to take more medication and so I have things lined up that I can do that make me super happy. I believe we have to do soul-searching to find out what brings us joy. I have seen it in other people that are worse than we, and it helps them navigate the good with the bad or the bad with the good. None of us get out of this alive in the-end, but it’s how we navigate the journey to fulfillment in our life. We are living longer than our ancestors and we want to be independent, but we have to navigate our own individual path in order to do that Good luck.

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Ha Ha Ha --Loriesco I feel like I am looking in the mirror when I read your story--I am a 69 Year old male dealing with this shit for 30 + years --the struggle has take up the part of my life that was supposed to be fun, sexual, excititing--wel God had a differen course of action for me!. The attitude is so important--I am a shrink and it is so easy to help others--but when it comes to moi--forget it! I have turned the corner regarding my expectations of fantasizing about being "the way I was" and dealing with the way I am and doing things ie exercise, relationships etc that I can and believe it or not being around people who support me the way I am--Ive gone through two marriages and now I am seeking a soulmate who believes me and loves me for valid expectations.! well thats a start You have been good for my mental health already!!! Tyrone L

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Explore pain rehabilitation and self-management.

Mayo has a 3-week pain rehabilitation center that can be very helpful. It changed my life.

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Profile picture for cpalisano @cpalisano

I am so very sorry! I feel your pain! I had 2 back surgeries ( back to back) ….my little joke….mid back down to my *ss! Never been the same since! In constant horrible pain.God bless everyone who has had back surgery! 🙏💕

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I have feelings for you and my wife has pain bad, and it is awful, I could not take it for sure . She has several procedures to help her pain . A stimulator and it has helped very little and now just recently she had Ablation I have no idea how to spell it however they inserted S small tube into her lower back to a nerve which is supposed to reduce her pain, and it takes 3 to 5 weeks to know and it has only been a couple of weeks . All we can do is hope . Gil

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Profile picture for dawnj @dawnj

Well I'm in tomorrow so my fingers and toes are crossed and all we can do is take painkillers and get on with our life's good luck to you

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Good luck & God bless!🙏💕👍

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Profile picture for tomb @tomb1

Explore pain rehabilitation and self-management.

Mayo has a 3-week pain rehabilitation center that can be very helpful. It changed my life.

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Not for everyone, though. I've read the course is 5 to 8 daily for 3 weeks. 5 to 8 would be unbearable for me.

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Profile picture for dawnj @dawnj

Spinal fusion and decompression

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So sorry for your situation. Pray you can find healing.
I have started meditating...recovery has worked for many others. Its no quick or easy fix but I truly believe our bodies are capable of so much more than we know.
Pls consider it/ Google it well so you understand the theory behind it...I had to...in order to believe.
Stay strong/ its hard. Best wishes.

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See an ORTHOPEDIC SURGEON. I got my life back by having my hips replaced and then to an orthopedic spine surgeon and had my lower lumbar dealt with. Got my life back after suffering for sooooo many years!

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