HFpEF

Thanks for clarifying Dizzy. The Dr wait is unbelievable isn’t it? I hope someone has a satisfactory answer for you at some point.

Oils were used since ancient times, sesame, olive, sunflower, even some animal fat like rendered lard and tallow is good for us. These oils are good for us and in modest amounts the animal fats. The big problem, as I see it, is the hydrogenation of petrochemicals as in crisco and margerines that gummed up our blood vessels because our bodies cannot digest hydrogenated fats of any kind.

Hi everbody. I have Hefpef diagnosed by invasive catherisation measuring the pressures. However, my symptoms are strange as if I do nothing at all for a couple of days or a week, I can take a long fast walk without experiencing any symptoms. But the symptoms will return the following day. Anybody else experience this?

Thank you for sharing. I have recently been diagnosed with HFpEF. Could you share where you found that study? I would like to read it and share it with my cardiologist. You have given me hope!

I find I only have so much energy to spend each day. If I’ve overdone the activities several days in a row I’m pretty much wiped out for a day.
I also had my pacemaker adjusted recently and my breathing significantly improved. So not as tired as before adjustment.

I just found this group and am relieved to find others with HFpEF. I have a history of diabetes and being overweight and have lost weight, lowered my H1ac and now have well-managed BP. I initially thought my issue was PACs roughly 20% of the time. No luck with an ablation and now taking Flecainide to manage PACs.
Shortness of breath and fatigue persisted. I was surprised to learn that the electro physiologist put “heart failure” on my after visit notes since neither he nor my cardiologist ever said those words to me.
I will see a new cardiologist in October and in the meantime have started Jardiance, which my endocrinologist prescribed.
It doesn’t look like there’s much information nor guidelines for this form of HF. As far as I can tell this diagnosis applies to 50% of people with HF

I’m still new to this diagnosis and am trying to figure out what to do. Most of what I know I have learned on the internet and it isn’t very hopeful. Happy to know what works for you. Just wondering what kind of diet some of you are on. I’ve been told to watch sodium. Dash, Mediterranean, and vegan diets have been mentioned but no one has recommended one over another. What have you found that works?

I’m not on a diet for heart disease because I don’t have any. I firmly believe my heart conditions are completely related to the covid vaccine. I had zero problems until I had them.
I do have hypoglycemia and follow the Eat Right for your Blood Type by Peter D’Adamo who is a naturopath. You can probably find his book at your library. I find the diet to be spot on and can see it would beneficial for heart disease too.
It’s hard to be at the beginning of a disease - feels like you’re the only out there walking in the dark. Keep asking questions here and of your doctor. Slowly a path will emerge. Good Luck.

Thanks for sharing. Seems similar to my symptoms. However, not so much breathlessness as extreme fatigue. Its feels heavy even just carrying a liter milk over the floor to the kitchen table.

I am taking the Bexagliflozin (Brenzavvy) SGLT2 inhibitor instead of Jardiance. I buy the Brenzavvy from Cost Plus Drugs directly and it cost me a quarter of what Jardance. Taking a variety of drugs adds up even with Medicare and cap copay at $2,000 per year.

What has helped my blood sugar levels is starting to take Ozempic. Not ideal but in my case the low carb and low sugar diet was not sufficient. Some meds will reduce the blood sugar numbers with testing but are not likely to increase longevity which is what matters to me.

Doctors overall treat numbers and not people and the individual needs to determine for themselves based on available information how best to proceed. A problem that is also common with heart meds is that there is a low dose for initial use and that is to determine if the individual has severe side effects before increasing the dose to the level shown in studies to be effective. But the doctors often do not after a few weeks go back and increase the dose for the prescription. Taking the lowest dose is not going to provide the expected results. This is true for Entresto and Metropropal succinate where there are low starter doses that are half the effective dose.