2017 NTM & Bronchiectasis Physician/Patient Conference

Posted by Paula_MAC-2007 @Paula_MAC2007, Feb 15, 2017

From NTM Info & Research, Inc.

2017 NTM & Bronchiectasis Physician/Patient Conference

Join us at a day-long CME-accredited conference on nontuberculous mycobacterial (NTM) lung disease and bronchiectasis, on Friday, May 19, 2017 at Georgetown University in Washington, D.C.

Sessions will cover a range of important topics on these two diseases taught by key opinion leaders from around the world, and the day will also feature Patient and Industry Panel Discussions.

Registration is FREE and breakfast and lunch will be provided. Space is limited so register early to reserve your spot!

Click here to register for the conference!
http://campaign.r20.constantcontact.com/render?m=1101618704496&ca=a3bfadb1-a1c9-412a-9f55-a293ef414355
Click here to view the agenda and faculty.
https://www.ntminfo.org/images/media/News/conference_flyer.pdf

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@Paula_MAC2007

VIDEOs of the NTM & Bronchiectasis Conference at Georgetown University on May 19, 2017 can now be found on YouTube, in four parts. Here are the links.

AGENDA: https://www.ntminfo.org/images/media/News/ODonnellWelcome.pdf
WELCOME: https://www.ntminfo.org/images/media/News/ODonnellWelcome.pdf

PART 01: https://www.youtube.com/watch?v=THHMhcpl5ww
PART 02: https://www.youtube.com/watch?v=u6AUbVso-zs
PART 03: https://www.youtube.com/watch?v=XmZhfJORfVA
PART 04: https://www.youtube.com/watch?v=tfpou1HAmtk

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@Paula_MAC2007, Paula, GREAT information .. thank you SOOO much for sharing!! What a group we have!! Hugs! Katherine

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I was diagnosed in 2021 by Dr Robert Penn in Omaha Nebraska with MAC Infection and have been on Azithromycin since then and it isn't helping

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@babykay

I was diagnosed in 2021 by Dr Robert Penn in Omaha Nebraska with MAC Infection and have been on Azithromycin since then and it isn't helping

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Hello, that's a long time to be on a medication without improvement. It sounds like your doctor is not familiar with the accepted protocol for treating MAC, which is to take 3 antibiotics at once, usually 3 times per week, but sometimes daily. Azithromycin alone is not enough to knock out MAC, it needs to be combined with ethambutol and rifampin, and sometimes, if that is not enough, a 4th medication, inhaled Arikayce may be added.

Second, there is another component to treatment, known as airway clearance, that helps eject the mucus - and the bacteria in it, from your lungs.

Perhaps you could ask to be referred to a pulmonologist or infectious disease doc who is more familiar with treating MAC?
Sue

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