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Profile picture for Ray Kemble @ray666

Hi, Janet

I've had to learn not to be rattled by that word "incurable." I have chronic idiopathic axonal polyneuropathy, which is also incurable. What my partner is wrestling with right now is finding an acceptable balance point between what therapies are critical if she wishes to preserve her life and how much of her life will she be able to retain once she has settled upon a therapeutic path.

Thank you for your comments! They are deeply appreciated.

Best wishes,
Ray

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Replies to "Hi, Janet I've had to learn not to be rattled by that word "incurable." I have..."

I have CLL which is chronic, to keep things in perspective remember the day your born you start to die. That outlook doesn't work for everybody but it is a different way to look at things.
When it happens it happens