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DiscussionHigh Risk Myelodysplastic Syndrome: What to Expect?
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (32)Comment receiving replies
Replies to "@ray666 MDS is incurable. When I was taking Revlimid, my HGB went into high normal readings...."
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Hi, Janet
I've had to learn not to be rattled by that word "incurable." I have chronic idiopathic axonal polyneuropathy, which is also incurable. What my partner is wrestling with right now is finding an acceptable balance point between what therapies are critical if she wishes to preserve her life and how much of her life will she be able to retain once she has settled upon a therapeutic path.
Thank you for your comments! They are deeply appreciated.
Best wishes,
Ray