1. < Polymyalgia Rheumatica (PMR)

How to address PMR pain while decreasing prednisone

Posted by barbararene @barbararene, Feb 13, 2017

I have been diagnosed w poly myalgia rheumatica (pmr). Am taking 5 mg of predisone, was taking 10mg.
Every time I go on a low dose, symptoms come back. I can't take pain meds, but do drink wine to ease pain, although I'm told no alcohol w prednisone. Anything you can share as far as info

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

jimma | @jimma | Sep 5, 2019
In reply to @jimma "If you’re not on warfarin try taking vitamins D3 and K2. They’re both anti inflammatory and..." + (show)
@jimma

If you’re not on warfarin try taking vitamins D3 and K2. They’re both anti inflammatory and great for the bones. I use K-vitamins.com read their website and links.

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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6110503/
Vitamin K2 helps remove brain lesions.

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dreamer38 | @dreamer38 | Sep 6, 2019
In reply to @johnbishop "@dreamer38 I normally waited a few days to make a change just to see if it..." + (show)
@johnbishop

@dreamer38 I normally waited a few days to make a change just to see if it was an overnight thing with the additional pain level. If the pain level didn't increase and it was tolerable I let it go another day to see if it would stay the same or get better. Some instances I found that the pain level decreased a little the next day. I'm sure it's different for each of us so it's something you just have to experiment with by making small changes up or down. My small was usually 1 mg or 1/2 mg prednisone. I found a good pill cutter and could cut the 1 mg tablets fairly easy.

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Thanks for info, John. Rheumy back in office now and I had to go back up to 20 mgm. Bit of a shock, but the pain was so bad. Also found out that #s were quite high. Can’t believe where one has pain from PMR...fingers, hands, hips, upper arms, neck, shoulders. Guess I should have called rheumy earlier...much earlier. Many thanks for everyone’s help!! It’s good to have this blog.

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igolf | @igolf | Sep 13, 2019
In reply to @jchatchett "I started at 20 mg now I am at 9 mg." + (show)
@jchatchett

I started at 20 mg now I am at 9 mg.

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are you still on prednizone? If so, what is your dosage now?

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John, Volunteer Mentor | @johnbishop | Sep 13, 2019
In reply to @igolf "are you still on prednizone? If so, what is your dosage now?" + (show)
@igolf

are you still on prednizone? If so, what is your dosage now?

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Hi @igolf, welcome to Connect. I would also be interested in learning what dosage or if @jchatchett is still on prednisone. I have had two occurrences of PMR but it is currently in remission and I hope it stays there. Have you been diagnosed with polymyalgia rheumatica also?

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John, Volunteer Mentor | @johnbishop | Sep 13, 2019

Are you new to Connect and sometimes confused when you see a post and wonder what happens when you click REPLY vs going to the bottom of the screen and clicking POST COMMENT? Take look at the following new discussion.

> Pages > About Connect: Who, What & Why > Replies and @mentions: How do I know who is replying to whom?
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kp5450121 | @kp5450121 | Sep 16, 2019

I am on 60 mg of predizone and bacterium 3 days a week. I have calcium,b12,b3,and magnesium to take I feel that I am not catching my breath back on some days but some days I can stand up and breath. I don't like that they gave me a low score from the government due to my information and that the government decides for mayo clinic.that is what blew me away and now I want a second opinion

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1 reply
igolf | @igolf | Sep 16, 2019

Hi John -- yes to PMR diagnosis. Started 20 mg twice/day prednisone on 9/6. CRP was 30; now 1. Doc wants me to stay on dosage level for additional 2 wks to see a drop in Sed rate.

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John, Volunteer Mentor | @johnbishop | Sep 16, 2019
In reply to @igolf "Hi John -- yes to PMR diagnosis. Started 20 mg twice/day prednisone on 9/6. CRP was..." + (show)
@igolf

Hi John -- yes to PMR diagnosis. Started 20 mg twice/day prednisone on 9/6. CRP was 30; now 1. Doc wants me to stay on dosage level for additional 2 wks to see a drop in Sed rate.

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Hi @igolf, Hopefully the SED rate drops when you have the next test done!

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 16, 2019
In reply to @kp5450121 "I am on 60 mg of predizone and bacterium 3 days a week. I have calcium,b12,b3,and..." + (show)
@kp5450121

I am on 60 mg of predizone and bacterium 3 days a week. I have calcium,b12,b3,and magnesium to take I feel that I am not catching my breath back on some days but some days I can stand up and breath. I don't like that they gave me a low score from the government due to my information and that the government decides for mayo clinic.that is what blew me away and now I want a second opinion

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@kp5450121 Can you tell me some more about your lung disease? How long have you had it? Who suggested a lung transplant?

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