How to address PMR pain while decreasing prednisone

Yay!! I learned something new today. Thanks @noosat1. I had no idea what kind of a bush a Salvia is and had to look it up. It's really pretty. Wished they would grow up her in the frozen tundra, I would be tempted to try them...maybe not though if I have to prune them all the time ☺
https://www.joyusgarden.com/pruning-perennial-salvias/

I take a little potassium if I get cramp seems to deal with mine.....also take magnesium that helps me a lot......but John is right lots of water is the best for you ......Beryl

@johnbishop

Hi John, I am now on 15 mgms of Prednisone, down from 30 which is good. Now have probs w/hips, but had cortisone shots to help. Can you tell me if you had blood pressure probs while on Prednisone ? Mine seems to be higher in the eve. I really enjoy reading your comments and hope your PMR stays in remission!!

Hi @dreamer38, I do have high blood pressure. Have been on different meds since my 40s (75 now). I usually check my BP in the morning but haven't noticed much difference checking it in the evening. Have you discussed it with your doctor? I have one of those wireless blood pressure monitors and have noticed the past few months mine is a little higher than it used to be so I plan to discuss it with my doctor next month at my yearly get together ☺

I hope PMR goes into remission for all of us and stays there! It can be a challenge to deal with. One of my biggest challenges is to keep moving even when it hurts a little. I think mild exercise is something that really helps.

Morning John, I passed one of my goals to-day. While stretching in the shower, I touched my toes not once, but 10 times. Hooray !!!!!!

Hello there,

I noticed that my blood pressure went up slightly. However, this morning it was quite a bit higher than expected. I intend to take it later in the day. I do think it is one of the undesirable effects of the prednisone.

It is native to Texas and can grow wild, several kinds. I am a Master Naturalist and conservationist, so am very careful what I plant, although if a bird drops a non-native in the yard and it blooms and thrives, I will let it be. I also have to watch out for deer, rabbits and other creatures that wander around my house.

I have been wondering what caused my PMR. I see that you are a master naturalist and conservationist. I assume that you dig in the dirt. This past spring & summer I did a lot of irrigation ditch digging for my lawn sprinkler system. Some of the time I was down on my hands & knees digging bare handed, sawing through roots, etc. After suffering from June to August 24th, I was diagnosed with PMR after a blood test that measures sedimentation rate went up to 44. Normal is 0 to 10. I'd like to hear from anyone who had a lot of contact with the earth or compost. I was started on 30 mg of prednisone and felt almost normal in 2 days with the exception of my shoulders which had been x-rayed and showed osteoarthritis.

Hello @pringsmuth, I see you have been a member since last October but this is your first post so I would like to welcome you to Connect and thank you for posting. I'm tagging @noosat1 since I'm assuming your post was meant to be for her. If you want to make sure the member sees your post, just type their @membername and they will receive an email notification.

I have no medical training or background but I don't believe they really know what causes polymyalgia rheumatica (PMR). The Arthritis Foundation has a good explanation of PMR on their site.

Polymyalgia Rheumatica Causes (2nd paragraph)
-- https://www.arthritis.org/about-arthritis/types/polymyalgia-rheumatica/

I don't believe contact with dirt has anything to do with getting PMR. I Had my 91st birthday this past January, so I have been doing it for a long, long time. Actually there is a theory out there that we have become so sanitary/clean that we tend to get more illnesses than our forefathers. My understanding of PMR is that there is no known cause, but that many people who suffer from it have undergone some stress in the body that triggers the autoimmune system to "misfire." I now believe that I was suffering from PMR long before diagnosis. I kept telling myself my pains were due to aging, I was very active. It was not until the pain in my thighs and shoulders became so unbearable that I could not sleep at all that I went to the doctor and found my SED rate was at 57 . After Prednisone 2 weeks ago it was down to 26, but it has to go under 20. I too have osteoarthritis. Mine is in my hips and lower back. This is giving me some pain/discomfit right now, but I think that is because I overdid yesterday. I finally touched my toes, but instead of doing it once and being satisfied, I did it 11 times. To-day is overcast, but warm, so I plan to take Lily dog to the park and see how far I can walk, slowly, before I have to rest. Hope you are feeling considerably better to-day 🙂