← Return to How to address PMR pain while decreasing prednisone

Discussion

How to address PMR pain while decreasing prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)
Comment receiving replies
@charlena

My husband is still on prednisone, it's been nearly 2 years. He has tried several times to decrease, but has always had to go back to initial doseage.
He is again trying a reduced doseage. Do you mind telling us what your symptoms are?
At his last doctor visit as the doctor was going over his symptoms, etc. he made the statement, "..... polymylagia rheumatica, if that is what you have, . .. ." Needless to say, we weren't happy with that statement. Another of his doctors advises that my husband's symptoms are not like any symptoms of patients he sees that have polymyalgia rheumatica. I research daily on my husband's symptoms and when I mention to his rheumatologist he doesn't seem interested in other possibilities. Probably time for a new doctor.

Jump to this post

Replies to "My husband is still on prednisone, it's been nearly 2 years. He has tried several times..."
marilyncarkner | @marilyncarkner | Sep 18, 2019

If you go to the Heathunlocked.com and type in PMR/GCA you will find.
A Wealth of information about these issues

VIEW AND REPLY
nativeoregirl | @nativeoregirl | Apr 2, 2023

I’ve been told based on painful shoulder (severe) legs arms and sometimes hands I have Polymylasia Rheumatica also. Very hard to get a diagnosis my Specialist stated as there are no actual tests but like you have all relative symptoms. My Primary Care could wait to pull me off the Prednisone which was for 3 months. We had to wait to see the Specialist Rheumatologist over 5 months. The recent 2nd option specialist said the full course for PMR with Prednisone is a minimum of 18 months. Because of the pain coming back full force after stopping Prednisone she feels I have it for sure. Running more tests to gauge inflammation and rule out other underlying unlikely causes, before I can start back at 15 mg per day! I felt so much better within 3 days, it was amazing. We’ll that’s my experience so far. Please share your symptoms too.
Hang in there!

VIEW AND REPLY