Allodynia: Anyone else sensitive to touch?

Sooooo happy to find this group
I have systemic Sclerosis and have recently developed this awful condition of alloy IAC. Yikes! It started in my thigh, jumped to my arms then my torso now my back and everywhere in between. No doctor believes me when I explain the pain. I have to drive with my back away from the seat back because of the pain
I can only wear slinky clothes as my jeans are so rough now against my skin. Good to know I'm not crazy. Thank you all for your posts.

Alloy A1C was supposed to print allodynia. Lol

Oh and systemic Sclerosis is the new word for scleroderma. FYI

Just saw this thread, and haven't read all the way back, so forgive me if this is old news. If you get migraines, allodynia is quite commonly linked to those -- corduroy fabrics, for example, are very challenging for me to touch. These won't fix anything, but the best socks I've found to minimize this problem in my feet are the "classic" versions of the World's Softest socks brand (not the others -- only the classics): https://worldssoftest.com/collections/classics

Yes, I have it. I put Lidocaine Patches that are prescribed by my doctor, over the most sensitive areas.

You might try taking OPC3 from shop.com or MediNox Pro from select health.com. They will increase small capillary blood flow and may help with nerve pain. I take it for preventing macular degeneration. My neuropathy is much less severe than most people’s on this blog. I take both and have no financial interests in the companies. My best on finding help…

I'm looking for a medication for Allodynia. It's become a trigger for me. Even when I take a shower with the water on my forehead, it gives me a headache. Also, when I get a massage and my head is face down in the cradle, it triggers a headache. Suggestions? Jim

I have allodynia that is caused by fibromyalgia that I have had for 30 years. When my skin burns I take half of a .5mg of Zanax. It stops the burning for about 3 to 4 hours then it starts again. Don't try amitriptyline. It has a side effect of burning and tingling. I am weaning off 30mg. of it that I took for 9 weeks and it did nothing for me but constipation. I am seeing a Neurologist and I think he wants to put me on Lyrica. It is very expensive but I will try it if he prescribes. It is probably like all antidepressants and will cause constipastion and other side effects. I am also very anemic and am on iron supplements and the Neurologist told me that anemia could be causing the burning.

My headaches are not pressure inside my head, but tight scalp muscles. I wear a CPAP, and that doesn’t help matters. I’ve found that when ordinary things are causing my entire head to hurt, it’s time for a dry needling session with my PT. Insurance doesn’t cover it, but the relief is worth the $85. When the knots in my shoulders are relieved, the pathway to head pain is better controlled. My head hurts most of the time, but it’s just part of my idiopathic small fiber polyneuropathy life now. I hurt all over. But identifying problem areas and releasing the tension ( for a while, it comes back) with a skilled physical therapist performing dry needling is part of my toolbox now.

I am 83 years old and have had fibromyalgia and IBS for thirty years. About two months ago I started having allodynia. That is a condition where my skin burns every day of my life. The only thing that gives me relief is to take Zanax. It lasts for about three hours and then my skin starts burning again. It makes me nervous and jittery and makes my blood pressure go up too high even though I am on BP medicine 3 times a day. I am going to a neurologist and he has had an MRI done on my Cervical spine and I have spurs on 3 of my disks. Does anyone else have this problem and if you do what do you take for relief. He has mentioned Lyrica. I have tried 30mg of Amitriptyline for 8 weeks and it did not help one bit so I am weaning off it.