Retinal "ink blots" when awaking in a dimly lit room

Posted by ljmontgo @ljmontgo, Aug 2 9:08am

There are some region of my retinas that are less light sensitive than others and these appear as sort of "ink blots" when I first open my eyes in the morning in a dimly lit bedroom. They disappear after my eyes have been open for a bit. The affected regions can get both larger and smaller over a few days. When smaller, there is a central blot with smaller blots on the periphery. When larger the central blots merges with many of the other blots and a new blot may appear to the side of the original blots. This expansion and contraction of the affected areas has happened multiple times over the past two years and I have been trying to discern what is the cause. It doesn't seem to be dietary and I have been taking AREDS vitamins consistently. The blots got larger while I weas vacationing but gradually got smaller after I retuned home. I have macular degeneration but this variability seems to be not normally associated with macular degeneration as my ophthalmologist had never heard of it.

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Profile picture for kayabbott @kayabbott

@ljmontgo I suspect my are the optic nerve blind spot at the back of our eyes, mainly because my husband sees the same thing and he has not AMD. I have a friend that has been getting injections for wet AMD (which he started out with) for 5 years, and his vision is still good enough for driving. He does use ai audio books that than recorded ones, because he said he can pause, ask ai a question about plot and other, and then continue. AI is apparently good for things other than just search engines.

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I’ve become an audiobook junkie too. If the problem is optic nerve related I think University of Maryland was doing some stem cell research on this a while back. I’ll se what I can dig up.

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Profile picture for chardar @chardar

I also have inkblots in the morning and putting in my systane drops takes them away. I also have wavy lines looking out a window in the house or the car window and if I move my eyes to look directly at them they disappear.

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I’m not a doctor but the wavy limes might be a sign of macular degeneration. If you Google
‘Amsler Grid” you can find a tool that might help diagnose it.

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Profile picture for ljmontgo @ljmontgo

I’m not a doctor but the wavy limes might be a sign of macular degeneration. If you Google
‘Amsler Grid” you can find a tool that might help diagnose it.

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Massaging and then 10 x2second finger pressure on each temple over time might diminish the black "spots"

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Profile picture for wck @wck

Massaging and then 10 x2second finger pressure on each temple over time might diminish the black "spots"

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Thanks. I”ll give that a try tomorrow morning.

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Profile picture for ljmontgo @ljmontgo

My shapes have stayed consistency except for getting a bit larger and smaller over the course of a few days. They disappear after my eyes stay open for a second or two. I’ve been diagnosed with dry AMD in left eye and wet AMD in right eye. I’ve been getting injections in right.

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After my cataracts surgeries i had what u called a 'football' black shape in my vision when i woke up, every day. That went on for probably a year then went away. My ophthalmologist essentially thought i was crazy. He said it wasn't there but every morning i saw it. It went away probably within an hour of my waking up. Sometimes it would reappear if i closed my eyes for a minute and reopened them. I am just glad it's been gone for over 15 years now.

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Profile picture for 56huxley @sjs1

My retina doctor Bascom Palmer trained said that if visual symptoms occur in both eyes at once, they’re not likely caused by AMD. I had a different phenomenon (perfect circles), upon waking in each eye and he offered me a referral to a neuro-ophthalmologist. You might want to consider that route too — it could relate to optic nerve adaptation or circulation changes, not the retina itself.

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Thankyou for sharing this information; really hit home!

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I have experienced visual "ink blots" in dim light for years. It usually happens when I wakeup during the night. At first, I was alarmed and asked my ophthalmologist about it. He didn't have much to say on the problem and even seemed reluctant to discuss it. So, I did my own research on the net and this is what I learned.
* People often see all kinds of patterns as the brain tries to make sense of what the eye sees when it can no longer receive needed info from the retina.
* It is an uncommon symptom of AMD and was noted by Charles Bonnet in the 1700s and is named for him.
* Understanding what it is makes all the difference in reacting to it when it occurs. It is not mental illness.
* See brightfocus.org and/or macularsociety.org for more information.

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Profile picture for ljmontgo @ljmontgo

Thanks. I”ll give that a try tomorrow morning.

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It will take more than overnight, my black 'dots" diminished then disappeared after around 3 weeks of each morning and evening doing the routine.

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Profile picture for woodcreekwoman @woodcreekwoman

I have experienced visual "ink blots" in dim light for years. It usually happens when I wakeup during the night. At first, I was alarmed and asked my ophthalmologist about it. He didn't have much to say on the problem and even seemed reluctant to discuss it. So, I did my own research on the net and this is what I learned.
* People often see all kinds of patterns as the brain tries to make sense of what the eye sees when it can no longer receive needed info from the retina.
* It is an uncommon symptom of AMD and was noted by Charles Bonnet in the 1700s and is named for him.
* Understanding what it is makes all the difference in reacting to it when it occurs. It is not mental illness.
* See brightfocus.org and/or macularsociety.org for more information.

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Thankyou for sharing; esp websites🌻

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Profile picture for ljmontgo @ljmontgo

My shapes have stayed consistency except for getting a bit larger and smaller over the course of a few days. They disappear after my eyes stay open for a second or two. I’ve been diagnosed with dry AMD in left eye and wet AMD in right eye. I’ve been getting injections in right.

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I worked up a couple of images to sort of convey how the size of the ink blots increase and decrease. I'm curious about what the mechanism is that can account for this. The other eye has a different ink blot pattern but also changes similarly.

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