My doctors know nothing

Fortunately, I don't have those issues currently. It is hard for me to tell what challenges I had initially from CAPTEM because I was very sick. I didn't like food for about 3 years, lost well over 100 pounds, had ascites and cachexia, and had endured diarrhea and vomiting for a long time. I started exercising after 4 cycles. After about 6 cycles, my doctor lowered my daily capecitabine intake to 2000mg from 2500mg. Most of my lingering issues, some of which were similar to yours, started to subside. How many milligrams are you taking daily? What does a normal cycle look like for you? How much time in between cycles do you take?

Unfortunately, it is a balancing act. It seems everything we take has a side effect or some other potential consequence. But, things did not look good when I got diagnosed 3 years ago. So, I am just happy to be alive. I shouldn't be. I will deal with the consequences of doing whatever I have to do to stay that way. Nearly dying gives me a completely different perspective than most. It was far worse than any chemo that I have taken so far. The side effects don't compare to the pain and sickness associated with dying. By the way, you are about 16 hours ahead of me. I am in Arizona. Happy Tuesday morning to you.

The dose you're taking sounded very high to me. Then I realized the med I am on is actually cabozantinib, not capecitabine. I usually go by its brand name, Cabometyx so I confused the medication names.
With this med I take 40 mg once a day. Standard seems to be 60 mg, but many patients find that too hard to maintain. No cycles, just once a day continuously.
Glad that your exercise program is working. I know I like to get out and bike ride if the heat isn't too bad (my heat tolerance is way down this year). Sorry if I created any confusion.

I'm most likely ahead of you in age to LOL & I think that is why I'm not really interested in fighting as hard as you did, But that only me, I've never been dead before so it should be some think to look forward to LOL As long as I don't sit there for weeks in lots and lots of pain. That I'm looking for. Beside Since I was told I had this Cancer I have not changed my ways of life, I still like my Cigssss and a few wines each day. But don't tell my Doctors that LOL

It is all good. My wife created a spreadsheet with all of the meds that take. It is nice to see how short the list is now. But I do keep the original list handy. There is no way to remember all of the names let alone pronounce them all. Have you found anything to help with your side effects? What have you tried?

You have 20 years on me, so I understand. I still have a lot that I want to do in my life. So I will fight as hard as I can as long as I can. I was kind of raised that way. My dad was a boxer.

I'm like Turkey. I want to stretch it out as long as I can. My surgeon told me two things. He said that I would be on Lanreotide the rest of my life and he said that I would live to be an old man. That was just over 2 years ago. I've still got stuff to do! I have a son to get through college. He is a mechanical engineering student at UAB. I want to be there with my wife when he graduates. I try to stay positive, active, and I try to do the best I can every day. That's what I wish for each of you! 🙂

Tomorrow is a real big day for me > I'm off to the hospital to have my PET Scan done, this will be scan No 4 & that will answer my question for me, because the last one I had was 3 months ago and the report was not what I was hoping for, so tomorrow is really big on what I do after it.
As I said you have a lot more to want to fight on for, I haven't & I will never ever be young like I was before. Only 2 Yrs ago I was still out on the golf course playing golf with my so called mate, but as soon as they found out I had Cancer it was like Oh sorry then I never heard for any of them again, which pee me off a little bit ( but that life ) By the way I'm in Sydney Australia Anyway Buddy Take Care & Cheers from Downunder

Thank you for you Kind words buddy, but as I said to Tommy you have something to fight for . I don't & I'm to old to want to fight, Cheers & take care

razorsharp, I've got a joke for you.

A dog can't read an MRI
but a catscan 🙂