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Has anyone completely gotten over Long Covid? Please post here

Posted by bermuda8 @bermuda8, Jul 14 8:33am

Hi - I went to the Mayo's Long Covid program and the Dr. told me "the good news is that it will eventually go away". Hoping to hear from some folks that are completely over Long Covid. I am hopeful this will be the case for everyone suffering from this awful illness eventually. Most likely once someone gets over Long Covid they probably stop following this message board. It would be great if they would post their circumstances and it also would give us some hope.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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bestrongnow | @bestrongnow | Aug 18 2:30pm
In reply to @cmr76 "Unfortunately I have not. I got covid in 2021 and still suffer from muscle weakness and..." + (show)
Profile picture for cmr76 @cmr76

Unfortunately I have not. I got covid in 2021 and still suffer from muscle weakness and extream fatigue. I keep hoping it going to get better.

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Unfortunately, I am also in the same sad boat. I have terrible shortness of breath and have been diagnosed with interstitial lung disease. Doctors believe it’s basically from my 4x with Covid. 😞 I am starting OFEV next week.

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bestrongnow | @bestrongnow | Aug 18 2:35pm
In reply to @miraclestar "I used the TENS largely in desperation due to all the disabling symptoms. Many of those..." + (show)
Profile picture for miraclestar @miraclestar

I used the TENS largely in desperation due to all the disabling symptoms. Many of those would probably have been diagnosed as dysautonomia had I been able to get proper medical care.
The electrodes went on the stragus of one ear and lobe of the other.
I used it over 3-4 days and the continous breathlessness went away, almost completely.

I also used a different array (placement of electrodes) on my ankle for urinary incontinence. That also worked, but only if I used it every day. Because I wanted professional guidance that was not available to me, and other LC patients were reporting problems with exacerbated symptoms in their self-treatment with TENS. I stopped.
Finally a visit to a neurologist, who didn't really understand what was going on with LC, got PT referrals, but I couldn't really drive, so never got that expert guidance.
I know TENS can help with pain and did help me with 2 of the most limiting LC symptoms at that time.

I hope that helped. I tried to upload a less personal and more comprehensive description of TENS yesterday but it was too large.

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I am very grateful that you posted this. I do have a TENS but I had no idea where to place the electrodes. Thank you so much! Any more information you have that can help with shortness of breath with TENS, I’m Al ears!!

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janeaddams | @janeaddams | Aug 18 11:09pm
In reply to @sandguy "Yes, well, try your best not to get too stressed out about it, and just work..." + (show)
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Yes, well, try your best not to get too stressed out about it, and just work within your capabilities, since we know that we pay when we over-do it.
I think I can say that I did indeed get over "Long Covid", which manifested in really very much the same manner for me several decades ago as Chronic Fatigue Syndrome. It lifted away "magically" on its own after about two years.
Similar to LC, it started out after what seemed like an ordinary flu, which was pretty typical back then.
I'm trying to be patient with myself this time around (about a year after first succumbing to acute Covid), and think I'm gaining some ground by just using prescribed stimulants to counteract the fatigue, which, thankfully, is really my only symptom.
But I think being "Buddhisty" is a great approach!

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In reply to @sandguy ... thanks, good advice. Easy to push too hard when you have a burst of energy and then pay the price. I can't imagine having CFS back in the day when people were simply accused of malingering At least with LC there's a growing (and more and more visible) community of people to share and learn from. Good to hear you're getting some help with stimulants... the fatigue is the worst. As you suggest, it seems as if we might just outlive this thing if we hang in long enough. The symptoms do seem to improve with the passage of time for many people ... fingers crossed for all of us. (I do love this group; couldn't have made it this far with some sanity intact without Connect.)

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janeaddams | @janeaddams | Aug 18 11:26pm
In reply to @friedrich "To janeaddams — Thank you for reporting to us the improvement in your LC symptoms. It..." + (show)
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To janeaddams —

Thank you for reporting to us the improvement in your LC symptoms. It increases my optimism that mine will also improve!

I also appreciate your describing the attitude you’ve taken towards your LC symptoms:
- Acceptance without resignation.
- Gratitude for the capabilities you still have.

I’m now participating in a group focused on Buddhism-based contemporary Mindfulness. I’m also practicing the same Acceptance and Gratitude as you are. And I’m using my own LC-related Suffering to teach myself greater Compassion for the Suffering of others.

This forum for people with LC has made me keenly aware of how severe many people’s symptoms are, and how mild mine are in comparison.

May we all experience improved health in the days ahead!

~ friedrich

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In reply to @friedrich Thanks for your kind wishes... the group you're in sounds wonderful. I especially like your observation about using your own suffering to learn compassion for others. Not sure if I've posted about a book that has been extremely helpful for me with LC: "How To Be Sick," by Toni Bernhard. She's an amazing role model and a Buddhist... and she teaches her readers how to live our best lives with LC (or any chronic illness). I'm trying to learn to live this altered life of mine with compassion and gratitude, and this Forum is one of the things I'm most grateful for. Namaste...

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friedrich | @friedrich | Aug 19 9:01pm
In reply to @janeaddams "In reply to @friedrich Thanks for your kind wishes... the group you're in sounds wonderful. I..." + (show)
Profile picture for janeaddams @janeaddams

In reply to @friedrich Thanks for your kind wishes... the group you're in sounds wonderful. I especially like your observation about using your own suffering to learn compassion for others. Not sure if I've posted about a book that has been extremely helpful for me with LC: "How To Be Sick," by Toni Bernhard. She's an amazing role model and a Buddhist... and she teaches her readers how to live our best lives with LC (or any chronic illness). I'm trying to learn to live this altered life of mine with compassion and gratitude, and this Forum is one of the things I'm most grateful for. Namaste...

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To @janeaddams —

Thank you for recommending “How to Be Sick” by Toni Bernhard. I just requested it from the Library.

~ friedrich

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h2998sc | @h2998sc | Aug 20 12:29pm
In reply to @bigj "Hi I am about 85 % over this Dam covid after 4 years" + (show)
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Hi I am about 85 % over this Dam covid after 4 years

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5 years here.ALMOST healed.Actually very close to no symptoms anymore.Lots of targeted vitamins for my system.For 3 years now.Stay in the fight guys.

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sweetwater9 | @sweetwater9 | Aug 20 4:11pm
In reply to @friedrich "To @janeaddams — Thank you for recommending “How to Be Sick” by Toni Bernhard. I just..." + (show)
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To @janeaddams —

Thank you for recommending “How to Be Sick” by Toni Bernhard. I just requested it from the Library.

~ friedrich

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Do not mean to be negative but how sick can she be if able to write and publish a book? I am lucky if I can manage to make dinner.

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roadog66 | @roadog66 | Aug 21 2:46pm
In reply to @cmr76 "Unfortunately I have not. I got covid in 2021 and still suffer from muscle weakness and..." + (show)
Profile picture for cmr76 @cmr76

Unfortunately I have not. I got covid in 2021 and still suffer from muscle weakness and extream fatigue. I keep hoping it going to get better.

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If your muscle weakness is caused by mitochondria dysfunction, try some creatine. It increases the muscles ability to produce energy and is used by bodybuilders. It is help me except in the arms and hands. It is not a stimulant. It is help me a great deal but it's not a cure. It may or may not work for you.

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rstern99 | @rstern99 | Aug 21 9:22pm
In reply to @h2998sc "5 years here.ALMOST healed.Actually very close to no symptoms anymore.Lots of targeted vitamins for my system.For..." + (show)
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5 years here.ALMOST healed.Actually very close to no symptoms anymore.Lots of targeted vitamins for my system.For 3 years now.Stay in the fight guys.

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Can you please add what vitamins you are taking. Have had this for 3 years and not getting better. Really need some help

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h2998sc | @h2998sc | Aug 22 12:46am
In reply to @rstern99 "Can you please add what vitamins you are taking. Have had this for 3 years and..." + (show)
Profile picture for rstern99 @rstern99

Can you please add what vitamins you are taking. Have had this for 3 years and not getting better. Really need some help

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I'm NO doctor.I have been watching Dr Paul Anderson on utube.For around 3 years now.He IS a REAL DR.Google him there.Watch what you think might open some options for ya.He's totally awesome,and brilliant.Wish I could say what vitamins...but every person is different and this virus damage is REAL.Big Hug to you...You won't be disappointed.I think I have an idea of what you're experiencing,so please take care and God Richly Bless YOU.You will get better.You made it this far...don't give up now.

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