Undiagnosed auto immune disease, put on Leflunomide

@lisabeans I'm glad to hear that you and your doc are looking at many different areas, that is good. A closer look at the head/neck might be a good next step along with the ENT. My ENT did an MRI of the head to check for the possibility of a tumor near the ear area and it was clear. The anti-vert med you are taking is a good one. I keep it on hand, especially when traveling. I was in a revolving restaurant one time when traveling and the next morning woke up with the world spinning and I was glad to have the anti-vert in my suitcase. Keep in touch as we will be concerned about you. Teresa

I suspect I also have an autoimmune issue. I am going to begin the diagnostic process soon by seeing a rheumatologist. Have a definitive dx would be a blessing for me.

Good luck to you. One thing that helps is writing down all your symptoms no matter how minor they seem. If you are anything like me, without it written down you will forget symptoms.

Hello @mschock, and welcome to Connect.

There are so many types of autoimmune diseases, and many of them have similar symptoms, which makes them very difficult to diagnose.
What symptoms are you experiencing? Do you have any advice that might help other Connect members with similar experiences?

I just joined this site so am a little guarded about putting info out there. I'm stepping out of my comfort to interact. As for my Sx. I have many little issues from chronic nausea to joint pains. I'm dragging my feet making an appointment. I you were to see me I look like the picture of health

Hello @mschock, I understand being guarded about sharing personal information and that's a good thing. Autoimmune diagnosis can be very difficult due to the wide range of symptoms and how each person is affected. I'm glad you have an appointment setup to see a rheumatologist. I would write down all of your symptoms and questions you want to ask the doctor to help them in their diagnosis as suggested by @lisabeans. You also may want to try the Mayo Clinic Symptom Checker at this page - http://mayocl.in/1iuydNA.

Please keep asking questions and pushing for answers.

John

Thanks. Are there specific questions to ask and what types of test i.e.labs Would be appropriate

I wished I had a better answer but I think the questions needed to be asked are related to your symptoms and then discussing with the doctor what are the best treatments/options available to help with your condition. This site may give you more information...

Good site that speaks to lab tests for autoimmune disorders, by illness. Its not meant to dwell on, just a good reference.
https://labtestsonline.org/understanding/conditions/autoimmune/
John

There is much to be said about journaling/logging.  From a multi perceptual view.  It helps our care giver better understand medical condition.  Nothing worse than a patient or peer, give wrong, or lacking information.  This goes for research or anything that is worthwhile, journaling/logging.  This is also critical in nursing, the work is not properly started or closed till the documentation.  So critical. JIM>>

Thanks for the input