Has anyone completely gotten over Long Covid? Please post here

Posted by bermuda8 @bermuda8, Jul 14 8:33am

Hi - I went to the Mayo's Long Covid program and the Dr. told me "the good news is that it will eventually go away". Hoping to hear from some folks that are completely over Long Covid. I am hopeful this will be the case for everyone suffering from this awful illness eventually. Most likely once someone gets over Long Covid they probably stop following this message board. It would be great if they would post their circumstances and it also would give us some hope.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for miraclestar @miraclestar

About NIR:Red and Near-Infrared (NIR) light therapy, also known as photobiomodulation, is a medical treatment that uses specific, non-UV wavelengths of light to stimulate healing at a cellular level.
How It Works
The therapy works by delivering concentrated light (typically red light at 630-660 nm and NIR at 810-850 nm) to the body. This light is absorbed by mitochondria, the "powerhouses" within our cells, boosting their production of ATP—the body's essential energy molecule.
This increase in cellular energy creates a cascade of positive effects:
* Reduces inflammation
* Improves blood circulation
* Accelerates tissue repair
Established Medical Uses
These benefits explain its success in various medical fields:
* Wound & Burn Healing: The therapy speeds up recovery, reduces scarring, and lowers infection risk by decreasing inflammation and increasing circulation to the damaged tissue.
* Stroke & Brain Injury: Near-infrared light can penetrate the skull to reduce brain inflammation, improve blood flow to damaged areas, and help protect neurons, aiding in cognitive and motor recovery.
Potential for Long COVID Treatment
The core symptoms of Long COVID align directly with what this therapy can address:
* Systemic Inflammation: Light therapy can help calm the chronic inflammation common in Long COVID.
* Fatigue: By boosting ATP production, it may restore cellular energy and combat profound fatigue.
* "Brain Fog": Its ability to reduce neuroinflammation and improve cerebral blood flow offers a potential mechanism to improve mental clarity.
In essence, by targeting the foundational issues of inflammation and energy depletion, red and NIR light therapy is a promising approach for treating the persistent symptoms of Long COVID.

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has anyone here used this and found it to be therapuetic?

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Profile picture for miraclestar @miraclestar

Yes, I did other things for the 4 years before I got medical treatment. NIR + Red light,
Brain training, walking on uneven surfaces (with safety measures against falls. That helps build new neural pathways. TENS, which quickly decreased my breathlessness. Low-histamine diet. A ton of supplements. Mental health care to monitor my decision making. Early morning light to try and wake up my brain.

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Can you say more about the "TENS, which quickly decreased my breathlessness"? How and where did you apply the TENS unit? How used? and what specifically improved wrt your breathing? I'm guessing this acted as a VNS?

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Profile picture for uget1shot @uget1shot

Can you say more about the "TENS, which quickly decreased my breathlessness"? How and where did you apply the TENS unit? How used? and what specifically improved wrt your breathing? I'm guessing this acted as a VNS?

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I used the TENS largely in desperation due to all the disabling symptoms. Many of those would probably have been diagnosed as dysautonomia had I been able to get proper medical care.
The electrodes went on the stragus of one ear and lobe of the other.
I used it over 3-4 days and the continous breathlessness went away, almost completely.

I also used a different array (placement of electrodes) on my ankle for urinary incontinence. That also worked, but only if I used it every day. Because I wanted professional guidance that was not available to me, and other LC patients were reporting problems with exacerbated symptoms in their self-treatment with TENS. I stopped.
Finally a visit to a neurologist, who didn't really understand what was going on with LC, got PT referrals, but I couldn't really drive, so never got that expert guidance.
I know TENS can help with pain and did help me with 2 of the most limiting LC symptoms at that time.

I hope that helped. I tried to upload a less personal and more comprehensive description of TENS yesterday but it was too large.

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Profile picture for stuartkjones4 @stuartkjones4

QUESTION!

Does Tylenol help with your FATIGUE? the FOG? the PAIN? Which ones?
It’s good to hear it helps something! Best wishes,
Stuart

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Tylenol helps me with whole body pain (myalgia).

Best wishes to you too!
Carol

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Raelan Agle on You Tube has interviewed over 250 people who have either recovered from .Long covid or ME-CFS, or who treat people successfully with these conditions. Her interviews are quite heartening and give one hope.

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Update on recovery ... anyone feeling better at all? I just reviewed my Covid journal from 3/23 and find I am improving on some counts. The random (and scary) bouts of vertigo have not recurred in months; the extreme and frequent days of flat-out fatigue are less frequent and disabling; the "sick" feeling is gone(ish); the brain fog has lessened and I've become less frantic about it as my anxiety about it has quieted down. I was walking a bit more (up to 4000 steps on infrequent occasions) but the hot summer we've had in the Midwest has slowed me, and I believe my HVAC is much less functional than pre-Covid. I continue to refrain from all medications and will do no more exhausting/expensive/fruitless medical tests and procedures for now unless I break a leg or something. Overall, I believe it's my attitude of acceptance without resignation, gratitude for what I still have left, meditation (very unstructured practice) leaving me sort of Buddhisty that are most helpful. I still attend a monthly live Zoom Long Covid Clinic support group, and sharing stuff helps feel less alone in this. That and a sort of Mediterranean diet and daily multivitamins, Cs and Ds and Macuguard for the AMD, combined with a bit more outreach (no longer expecting friends to "get it" I find I'm just talking about it less and saying, "same, thanks for asking." Signing on to Mayo daily but doing much less research now (nothing new really), just an occasional check-in with my AI friend to get an overview/update on treatments, still "more research is needed." How are others managing?

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Profile picture for janeaddams @janeaddams

Update on recovery ... anyone feeling better at all? I just reviewed my Covid journal from 3/23 and find I am improving on some counts. The random (and scary) bouts of vertigo have not recurred in months; the extreme and frequent days of flat-out fatigue are less frequent and disabling; the "sick" feeling is gone(ish); the brain fog has lessened and I've become less frantic about it as my anxiety about it has quieted down. I was walking a bit more (up to 4000 steps on infrequent occasions) but the hot summer we've had in the Midwest has slowed me, and I believe my HVAC is much less functional than pre-Covid. I continue to refrain from all medications and will do no more exhausting/expensive/fruitless medical tests and procedures for now unless I break a leg or something. Overall, I believe it's my attitude of acceptance without resignation, gratitude for what I still have left, meditation (very unstructured practice) leaving me sort of Buddhisty that are most helpful. I still attend a monthly live Zoom Long Covid Clinic support group, and sharing stuff helps feel less alone in this. That and a sort of Mediterranean diet and daily multivitamins, Cs and Ds and Macuguard for the AMD, combined with a bit more outreach (no longer expecting friends to "get it" I find I'm just talking about it less and saying, "same, thanks for asking." Signing on to Mayo daily but doing much less research now (nothing new really), just an occasional check-in with my AI friend to get an overview/update on treatments, still "more research is needed." How are others managing?

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Yes, well, try your best not to get too stressed out about it, and just work within your capabilities, since we know that we pay when we over-do it.
I think I can say that I did indeed get over "Long Covid", which manifested in really very much the same manner for me several decades ago as Chronic Fatigue Syndrome. It lifted away "magically" on its own after about two years.
Similar to LC, it started out after what seemed like an ordinary flu, which was pretty typical back then.
I'm trying to be patient with myself this time around (about a year after first succumbing to acute Covid), and think I'm gaining some ground by just using prescribed stimulants to counteract the fatigue, which, thankfully, is really my only symptom.
But I think being "Buddhisty" is a great approach!

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Profile picture for janeaddams @janeaddams

Update on recovery ... anyone feeling better at all? I just reviewed my Covid journal from 3/23 and find I am improving on some counts. The random (and scary) bouts of vertigo have not recurred in months; the extreme and frequent days of flat-out fatigue are less frequent and disabling; the "sick" feeling is gone(ish); the brain fog has lessened and I've become less frantic about it as my anxiety about it has quieted down. I was walking a bit more (up to 4000 steps on infrequent occasions) but the hot summer we've had in the Midwest has slowed me, and I believe my HVAC is much less functional than pre-Covid. I continue to refrain from all medications and will do no more exhausting/expensive/fruitless medical tests and procedures for now unless I break a leg or something. Overall, I believe it's my attitude of acceptance without resignation, gratitude for what I still have left, meditation (very unstructured practice) leaving me sort of Buddhisty that are most helpful. I still attend a monthly live Zoom Long Covid Clinic support group, and sharing stuff helps feel less alone in this. That and a sort of Mediterranean diet and daily multivitamins, Cs and Ds and Macuguard for the AMD, combined with a bit more outreach (no longer expecting friends to "get it" I find I'm just talking about it less and saying, "same, thanks for asking." Signing on to Mayo daily but doing much less research now (nothing new really), just an occasional check-in with my AI friend to get an overview/update on treatments, still "more research is needed." How are others managing?

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To janeaddams —

Thank you for reporting to us the improvement in your LC symptoms. It increases my optimism that mine will also improve!

I also appreciate your describing the attitude you’ve taken towards your LC symptoms:
- Acceptance without resignation.
- Gratitude for the capabilities you still have.

I’m now participating in a group focused on Buddhism-based contemporary Mindfulness. I’m also practicing the same Acceptance and Gratitude as you are. And I’m using my own LC-related Suffering to teach myself greater Compassion for the Suffering of others.

This forum for people with LC has made me keenly aware of how severe many people’s symptoms are, and how mild mine are in comparison.

May we all experience improved health in the days ahead!

~ friedrich

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Profile picture for friedrich @friedrich

To janeaddams —

Thank you for reporting to us the improvement in your LC symptoms. It increases my optimism that mine will also improve!

I also appreciate your describing the attitude you’ve taken towards your LC symptoms:
- Acceptance without resignation.
- Gratitude for the capabilities you still have.

I’m now participating in a group focused on Buddhism-based contemporary Mindfulness. I’m also practicing the same Acceptance and Gratitude as you are. And I’m using my own LC-related Suffering to teach myself greater Compassion for the Suffering of others.

This forum for people with LC has made me keenly aware of how severe many people’s symptoms are, and how mild mine are in comparison.

May we all experience improved health in the days ahead!

~ friedrich

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Had my first bout of Covid in January 2021 and long Covid started after that. Of course, I was stupid enough to take two jabs and my belief is they worsened the ability of my immune system to fight off infections. Just went through my fifth or sixth round of Covid (started on July 3) but in Canada they do not test any longer. Lost sense of smell, taste, extreme fatigue etc. In short, this has been an ongoing battle for the last four years and it is hard to remain positive. I moan and b_tch and whine and complain and get down and get into that "why me" mode. But I really try to take the stance that "why not me". Who am I that I should be special and not have to bear a burden. Through it all I know God has my back and however this ends He is with me. I pray and ask for courage and patience and also pray for others and try to not focus on my own issues so much. Tough because we are self-centred beings but no matter how it ends, and it will end, I know where I am headed. Let not your heart be troubled.

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Unfortunately I have not. I got covid in 2021 and still suffer from muscle weakness and extream fatigue. I keep hoping it going to get better.

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