ANA positive for Lupus

Posted by hunterhadley03 @hunterhadley03, Jun 15 7:20am

So I had blood test done and my ANA test came back positive. The test results came back ANA TITER # 1 abnormal 1:80
ANA PATTERN #1 Nuclear, Speckled abnormal
(Ac 2,4,5,29) Speckled
ANA TITER # 2, 1:320 HIGH
ANA PATTERN #2 Nuclear, nucleolar
(AC- 8,9,10: Nucleolar
What does this mean???
My doctor said all other test came back normal but this one. She said I have Lupus!! I don’t understand and I’m scared and worried.

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Profile picture for davidvictordavid @davidvictordavid

My wife has been diagnosed with lupus and Sjögren's Syndrome for about two years now. Her body pain and tiredness keep her bedbound most of the time during the flare-ups. The inside of her mouth also inflames. This makes eating solid food difficult. Protein shakes sustain her and help maintain her immune system during these times. However, everything has its trade-offs. The high protein causes her constipation. I am hoping that adding this Biotics Research Methylfolate Plus and a B12 supplement will provide added relief. We will contact her rheumatologist.

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Hi davidvictordavid,

I have been away from this support group for a few weeks and am checking back in.

For constipation on a liquid diet, consider slippery elm inner bark powder. It supports the gut mucosa and helps stool slide along. I helps me a lot. I add 1/8 teaspoon to almost everything I consume. If stool gets too lose, use less often.

If she can tolerate some chia seed powder (I can only take 1/2 teaspoon a day) that could also help with constipation. Spinach powder and other vegetable powders could help with her immune system and provide fiber. You'll have to experiment and see what could help.

Lastly, if she can eat/drink thin hot cereal, try LiveKuna Green Plantain Flour. It is easy to digest (green, so no sugar) and has some fiber. You could try some organic stevia (100%) drops for sweetener (if sugar is off limits) or the sweetness/flavor of any milk can be enough.

LiveKuna is the best brand. Others brands I have tried were icky. I also add some liquid egg whites to thicken it up and add protein. I don't know if that would work for your wife. Protein is good for healing the gut and egg white protein is easy to digest.

By the way, the B12 is take is Pure encapsulations Adenosyl/Hydroxy B12. It is gentle and I just take 2 drops in a bit of water a day with the Methlyfolate mentioned in my earlier post.

If you Google Folate (or MethylFolate, I cannot remember), there is some supposition in the research literature that it could help with lupus.

As far as Sjogrens goes, I do not have much to add other than I may be inching toward it with dry eyes and dry mouth and my eyes increasing sensitivity to lights. For the first two symptoms a specialist said to drink water (just liquid, not enough). And I wear sunglasses more often for the light sensitivity.

Hang in there. You are a loving husband looking after her as well as you are doing and I wish your wife better times ahead.

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Sooo I literally feel like I just wrote that myself. I hope this thread isnt old cuz I am newly diagnosed and just mind blown at all of this. ~ Jodi

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Profile picture for gammelljodi74 @gammelljodi74

Sooo I literally feel like I just wrote that myself. I hope this thread isnt old cuz I am newly diagnosed and just mind blown at all of this. ~ Jodi

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@gammelljodi74 Hi, Jodi, I’m so glad you found this site! And jumped right in! No, the discussion isn’t old. Many discussions were started months or years ago, but members have jumped right in and brought them up-to-date. So you have lupus? There are many discussions on lupus, which you may want to look at. You can get very involved on MCC so get started!

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It’s best to go to a Rheumatologist to confirm Lupus. I hope you find the right answers.

I’ll tell you a bit of what I’ve been told. Which I always got mixed stories and never got a straight story. The blood test alone don’t provide a diagnosis and there is a check list of symptoms that doctors go by. Lupus doesn’t always show up on a blood test. One of my blood test was a positive once and I was also told that both had to be positive. Supposedly 4 of 5 I’ve meet and still no diagnoses. I also have a higher risk for Lupus because of my mother has lupus, I have an autoimmune gene, I have autoimmune antibodies that showed up on a thyroid test and autoimmune runs in our family.

Stay on top and make sure all your questions get answered by your doctor that has a specialty in autoimmune disorders like lupus.

Also, lupus is treatable. It’s something you’ll have for the rest of your life, but nothing to be scared about. My mother is 76 with lupus.

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I have had Lupus ANA positive test at least 5 times. I was told once when the numbers go up they will never come down. The test were done many years apart and with many different readings. I had a Cleveland C. Rheumatologist tell me to forget i ever saw the results and live my life . They do not have a cure. so unless something really affected me, just keep living life. They are odd and many do not think outside the bax. . My cousin was with me one time and she said, " I couldn't believe you didn't respond back. " It gets so frustrating to have so many odd things happen to one self, and when you seek help you meet the strangest medical people. Frustration doesn't begin to cover what you feel. Keep your faith in God and remember miracles do happen .

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