I feel like giving up
I don’t think my GP fully understands peripheral neuropathy and therefore is unable to offer treatment advice. He eventually got me to see a nhs neurologist who seemed to dismiss my condition as fairly minor. I do not have medical insurance so where do I go. My condition is slowly getting worse.
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Don't give up
These are the moments when the psyche does its thing and emotions take the lead. What could be the cause of this? Probably the feeling that other people are the ones who will help us out of our problems. This is not empty philosophizing, but psychosomatics works this way. With the utmost humility and respect for doctors, they are not the main ones who will reverse the degeneration of the body and restore full health. It is only us, and they are assistants on this journey. I am in a similar situation, I feel that there is no one in the world who can help me. And there isn't. EMR, CT, and other tests are on a physical, manifest level, checking what manifests in the body. The psyche does a lot, there are specific procedures that help. Fear is a strong emotion, but a negative one. It affects our decision-making, and that is related to our nerves. Ours are damaged, but there is a way out, we just have to find it. Those who seek shall find. I'm keeping my fingers crossed for you,
Peter from Central Europe.
Thanks Peter
u'r welcome 😉
@bigjohnscho
What are your symptoms and how long have you had them? Are you diagnosed and treated for anything else? Do you take medication? Have you had neuropathy bloodwork panel and have they ruled out diabetes or vitamin deficiencies or toxicities?
@bigjohnscho
You would benefit from seeing a registered dietitian to review diet and supplements to recommend changes. I take alpha Lipoic acid, magnesium and Acetyl l carnitine for small fiber neuropathy and it helps.
My understanding is alpha Lipoic acid also helps with sugar sensitivity (I am also prediabetic and my mom had type 2 diabetes so I am at risk).
Just out of curiosity: are you familiar with the work of Dr. Perlmutter from Florida? He has quite controversial views on the connection between neurological issues and overall lifestyle, including dietary changes, etc. Here in Europe, he has been quite successful with his books, from what I've seen. I found it particularly interesting because he is a practicing neurologist. How do you see it from your perspective, from the inside?
Everything you mention above is also on my radar: alpha-lipoic acid, magnesium, in oil form too, resvetratrol, NAD+, etc.
Blue night…I see your mention of Alpha Lipoic Acid.. My cardiologist recommended that to me…which I took for awhile then did some research and found that R-lipoic acid is better. It’s a purer substance..is more effective and has fewer synthetics..here’s the link https://www.advance-health.com/rlipoicacid.html….
Find a neurologist that you can work with. It took me three tries (including "a leading neurologist") plus a pain clinic to find a doctor whom I feel comfortable with. He is working with me to find the cause of my PN and the prognosis.
What dose R Lipoic acid. I tried it in the past but it upset my stomach
Hi there. My peripheral neuropathy started within a month of finishing chemo. I was having excruciating pain. That was 20 years ago. My first diagnosis was fibromyalgia and chronic myofacial pain. I was blessed to find pain management. Years later, I was diagnosed with chemo induced peripheral neuropathy. I have no idea if that’s right for you. But I understand from other people that acupuncture might help, massages, and some other type things- I’m not really sure what else.
I’ve continued to have pain and other symptoms all these years
( numbness and tingling in my legs and feet, muscle spasms, pain all over that’s unpredictable and moves around) and really haven’t had much luck with doctors either. They seem to believe me. But I just don’t think there’s a lot they can do for it.
I hope you get some results.
I know it can be disheartening. But hopefully you’ll find some kind of help.