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Are there support groups for Myelofibrosis?
Blood Cancers & Disorders | Last Active: May 24 6:28am | Replies (31)Comment receiving replies
Me too - we could start one? Diagnosed June 2025 - such a shock. I have an SRSF mutation- means I could move to AML.
Replies to "Me too - we could start one? Diagnosed June 2025 - such a shock. I have..."
@davi093. hi I was diagnosed with Myelofibrosis Jan 2024. I am now 67. Had bone marrow /stem cell transplant November 2024, donated by my daughter. I want to give all of you hope. I have @90% of energy back , all my blood levels in normal range. Yes it was hard, had several chemo treatments, also Jakafi and radiation. Take it day by day. You can survive and even thrive. My life is now the new normal. Still don’t seem to have any immune response and I must be vigilant, but life is good. And so it will be for you. I was treated at Sidney Kimmel Cancer Center ,Johns Hopkins Hospital in Baltimore, Maryland. Gail
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@davi0937 Wondering if you found a group specific to mylofibrosis. I too was diagnosed this June and I’m just looking for Support.