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Myectomy with valve replacement

Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 1, 2016 | Replies (50)

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@lina2017

please help.I went with my husband today to see a local surgeon just for consultation.My husband has Hcm with SAM septal.He told us he has the thickness all over and if he do the septal myectomy he will ended up for transplantaion in 5 yrs .That freaked me out .
Is it extended myectomy for those who having this type of thickness?
i saw from your post that you had an extended myectomy .

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Replies to "please help.I went with my husband today to see a local surgeon just for consultation.My husband..."

I had an extended myectomy 10 1/2 years ago and am doing great. Best advice is to go with a very experienced surgeon. I also have concentric hypertrophy (the thickness all over) and the surgery helped me tremendously and I am nowhere close to transplant. Mayo Clinic and Cleveland Clinic are top two in U.S. Where are you located?

I am in Austin texas ..I got an appointment with dr oommen and schaff in April. Did you also have a SAM hypertrophie ?

Yes I did. He is in great hands at Mayo, I have felt much better since my surgery. There is much they can do with myectomy at Mayo and you see with the right surgeon in case your husband needs an apical approach as well.

HI Lina, If you would have interest in meeting in person while in Rochester, just please message me and we can try to connect. I work in Public Affairs at Mayo and had a septal myectomy and double bypass in December of 2015. I feel so much better after this procedure, and there are few things I might be able to share to make your experience even more positive, depending on whether or not you have surgery. Dr. Schaff did my surgery and I am familiar with Dr.Ommen. Both are fantastic. Good luck.

Thanks Ronald ..That is so great .i have now the appoinment with dr Ommen and Schaff on April 17th.hope i can meet you in person.

Thank you ...

Sounds good. As we get closer to the date, please send me a private message via this forum with your contact information, and we can do our best to connect. Group rules don't like it if personal information is sent over the group communication. Best of luck, hope to see you. Thanks, Ron