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Myectomy with valve replacement
Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 1, 2016 | Replies (50)Comment receiving replies
I agree with what everyone else has said. It is really imperative to go to a center that is expert on dealing with HCM. I traveled to Mayo Clinic in Minnesota from California in order to have mine. Valve repair is sometimes not necessary at all after myectomy and if it is, they can both be done simultaneously. Would you be able and willing to travel for surgery? That would be your best bet.
Replies to "I agree with what everyone else has said. It is really imperative to go to a..."
Hello @lina2017! I wish you well with your travels to Mayo. Attached here- http://mayocl.in/2jGPdO7 is the contact information for obtaining your first appointment. When you call to initiate your first appointment you will be greeted by a Appointment coordinator specialist who will get you set up in the right area. This will be a good time to ask the question about wait time for surgery. This will be the start of your Mayo Clinic experience.
You may be interested in reviewing discussion in our traveling to Mayo Clinic group (https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/). Here you will find discussion with other members on what to expect when coming to Mayo. Within these discussions there are a bounty of tips from other members who have experienced Mayo Clinic first hand. Please feel free to reach out to any members of the Mayo Clinic Connect community if you have any questions.
Please keep us updated along the way with your journey at Mayo. For the sake of future members reading this thread, would you mind letting us know about the wait time for your husbands appointment and surgery? It will benefit others along the way. Thank you!
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yes..We would like to travel to Mayo .