@blessedgramma Omg, I felt as though I was reading my own writing just now reading your account of suffering and frustration! I was supposed to go to P.T. for bladder pain (was told I have hypertonic pelvic floor disorder) I do not want someone to put their hand up my vagina and try and figure out what muscles need to be worked on and make a plan for me. At this point throughout so many trials and errors, tests after tests trying to figure out why I have so much pain-I am so burnt out and further Dr. visits seem like a waste of time, I feel like my husband wonders each day when I will start up with the symptom complaining. For the past year Ive had to self cath. once a day because my bladder isn't able to empty completely, so now- a person who normally got 2 or so UTI's a year, gets one every couple of months. Sometimes my urine test comes back as many bacteria and elevated white blood cells but when they culture it there is no infection. I've used hot packs between my legs, ice, ibruphrofen, etc. I have just found out I have moderate-severe narrowing in my sacral area-I have looked into the GAG layer and Im positive my bladder lining is so damaged that bacteria hides out in the cracks during a corse of antibiotics then pops back out after the antibiotic is done and starts to regrow. I can tell you this, you are certainly not alone in this, but it does feel like it-I HEAR you! I just want to feel normal again too! Im 66 years old and feel like Ive aged 10 years in the last two years. Hope we can help each other if not just to have someone that understands completely what this special kind of hell on earth is!