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Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Blood Cancers & Disorders | Last Active: Sep 23 6:01pm | Replies (94)
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Profile picture for montauk @montauk

You are blessed.

11.3 while low is a lot closer to normal than the majority of people on this web site.

When I was at 11 a few years ago I felt great and lifted heavy weights 6 days a week.

Now when I am between 6-9 on hemoglobin, and getting monthly blood transfusion I am constantly tired.

I hope just starting on daily 5 mg Revlimid I see some improvement.

Thanks for responding;

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Replies to "You are blessed. 11.3 while low is a lot closer to normal than the majority of..."
janetlen | @janetlen | Aug 12 8:54am

Thanks! The 11.3 after starting Revlimid was a blessing since I was at 8.7 two days after starting the medication. Like you, I started a quick downward spiral six months into the disease. Like you my HGB was near normal two years ago when I was first diagnosed. I have been at the low and I have been blessed to have a medication make my HGB normal. I believe all MDS patients experience the highs and lows. I wanted to avoid transfusions and still do, but I also know at some point I will not be able to avoid them. Nothing is worse to me than being dependent on another human being for my life! I can't live like that for very long.

I pray that you will have a positive response to Revlimid or some other medication and your HGB will return to normal.

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