AML: I'm having a hard time to stay positive, what helps?

Posted by bettersleep68 @bettersleep68, Mar 9 8:12am

I am having problems trying to stay positive with the aml..what if I do all the treatments and no remission I am very depressed. What can I do to make myself feel more positive

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jacklyn | @jacklyn | Aug 9 3:36pm

In reply to @bettersleep68 "Yes...but still nervous about having it done..but I need to get it done..I will start my..." + (show)

Hi there. I have been recently like diagnosed with AML. Like you I fell and broke my L1and L5 vertebrae. The pain was excruciating. I made three trips to the ER during it all because of the pain. I had had a hip replacement prior to that and it helped me to live again without a walker. So the fall was a big set back and I had a terrible depression that nearly took m a life. Do
I hope you are surrounded with a good medical team for your anxiety and all. On a lighter note my back
Is better but still doing physical therapy to try and strengthen it. I have had several bone marrow biopsies and like you was terrified it would cause that pain yo come back again. However it has been fine. I have to do another one after I finish the 7 + 3 chemo infusion regimen. I am sure your oncologist is aware of your serious back situation and will be very careful. Unfortunately with AML bone marrow biopsies have to be done so they know if we reach a remission. I turned it all over to God and he is getting me through it all. May God bless you with good results.

bettersleep68 | @bettersleep68 | Aug 9 7:39pm

In reply to @jacklyn "Hi there. I have been recently like diagnosed with AML. Like you I fell and broke..." + (show)

Thank you for your reply..seems we both have the aml along with back issues...Praying we both get into remission and stay there...the prayers and God will get us through this.

jacklyn | @jacklyn | Aug 9 10:07pm

In reply to @bettersleep68 "Thank you for your reply..seems we both have the aml along with back issues...Praying we both..." + (show)

🙏🙏🙏🙏🙏❤️❤️❤️❤️

Lori, Volunteer Mentor | @loribmt | Aug 10 6:49am

In reply to @bettersleep68 "Thank you for your reply..seems we both have the aml along with back issues...Praying we both..." + (show)

Wishing you smooth sailing with your biopsy tomorrow! And of course, only the very best news for the results.
Crossing my fingers, toes, eyes… ☺️

bettersleep68 | @bettersleep68 | Aug 10 9:17am

Thank you

Lori, Volunteer Mentor | @loribmt | Aug 11 3:30pm

In reply to @bettersleep68 "Thank you" + (show)

I know you were concerned about your back during the biopsy. Other than the biopsy site, is your back ok?

bettersleep68 | @bettersleep68 | Aug 11 7:05pm

In reply to @loribmt "I know you were concerned about your back during the biopsy. Other than the biopsy site,..." + (show)

No...I have one more compressed vertebrae that I need surgery on..atleast I am walking some ...thanks for asking . biopsy went well...waiting for results

hanya | @hanya | Aug 12 12:09pm

In reply to @bettersleep68 "So glad to hear from you..I have ups and downs...had to get 2 units of blood..." + (show)

Hello friend! I feel your physical and emotional pain and distress ! I am in process of getting my MYELOFIBROSIS CONFIRMED BY HAVING TO GO THROUGH ANOTHER BMB ! I honestly dread it ! I have pain from bad degenerative disc disease!! No way to fix it ! I do take anti inflammatory medication called MELOXICAM! Have to have every day!
I also have to deal with continuous depression!! I take two anti depressants daily !! So ! I must make certain to take them to function daily!! Please do not feel embarrassed about needing medication for depression!! Anyone who has to deal with serious illness needs help to cope with the burden of illnesses!
Speak to all doctors about getting some help with depression! When I do not take medication!! I begin to feel very weak and afraid of not being able to care for myself!! It’s a very disabling feeling!! I start to get anxious and panicky during the night !! It’s awful!! Please help yourself to be able to battle the illness !
I wish the best of for you
And strength to get stronger!
Sincerely

bettersleep68 | @bettersleep68 | Aug 12 6:55pm

In reply to @hanya "Hello friend! I feel your physical and emotional pain and distress ! I am in process..." + (show)

Thank you for your sweet encouragement
I know i get depressed going thru all that aml stuff. Glad to hear you are doing better..thank you again...good health to you

hanya | @hanya | Aug 13 2:10pm

In reply to @bettersleep68 "Yes...but still nervous about having it done..but I need to get it done..I will start my..." + (show)

Hello again ! I hope I am NOT TAKING OVER THE SITE !
It’s ok to be nervous!! We all are ! Even scared !! Just few days ago all my blood work came back extremely low !! All way in the RED !!
This is compelling me to go back to YALE CANCER CRNTER !! Scythian coming Tuesday ! I will be asking my specialist to write that order for my forth BMB bone marrow biopsy!!
Yes I am asking first time to be sedated at their INTERVENTIONAL RADIOLOGY!! I know how it hurts so taking the less painful option!!
My friend ! BMB IS REALLY THE ONLY WAY FOR DOCTORS TO REALLY GET A TRUE PICTURE OF WHAT YOUR BONE MARROW IS LIKE! As I stated before! I have no choice if I want to get the best treatment for myself!
Good luck ! Many people who are in this site ! Are pulling for you ! And hoping for best and most accurate results! Sincerely

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