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Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?
Blood Cancers & Disorders | Last Active: Sep 23 6:01pm | Replies (94)Comment receiving replies
I also have 5q and I am on 5mg Revlimid for the last month.
I have felt zero improvement
My hemoglobin goes to mid 6.0 between monthly 2 unit blood transfusions.
The highest my hemoglobin has been is 9.0 a day after a 2 unit blood transfusion.
Have you with 5q seen any improvements in hemoglobin levels, what is your treatment and what is your hemoglobin number ?
Replies to "I also have 5q and I am on 5mg Revlimid for the last month. I have..."
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I started out on 10mg Revlimid, but I had to go to the lesser dose (5mg) because the higher dose was too hard on my platelets and WBC. The Revlimid brought my RBC and HGB up from 8.7/9.0 to 10 and kept rising until 14-15 range. The Revlimid lasted roughly 15 months. My HGB and RBC are just below normal now which is similar to when I was first diagnosed. I took my first round of Inqouvi 2 weeks ago. My platelets(39) and neutrophils(.5) last week. The oncologist told me it can take a few months to see improvement. To date, I have not had transfusions, but I think those days are coming to an end. The treatments average about 2 yrs of success before we have to try something else. Have you tried anything else? Are you a candidate for a stem cell transplant?