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Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?
Blood Cancers & Disorders | Last Active: Sep 23 6:01pm | Replies (94)Comment receiving replies
Two years. The factors in my MDS are probably very different than yours, so do not base your MDS on mine. You could well be one of those people who respond well to treatment and live 10 or more years. How old are you? Did you run the IPSS-R calculator yet? When you do, it will show you a life expectancy, but remember many people live beyond the life expectancy. I am back on the transplant track once I get approvals.
Replies to "Two years. The factors in my MDS are probably very different than yours, so do not..."
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I just turned 61 in July. My hemotologist gave me the diagnosis of low risk MDS last Wednesday on the phone. He said he did not have all the bone marrow test results back yet. I still have my appointment in his office for Aug 11. All he said was that the treatment for now is to not do anything.
I am very concerned of two things: (1) how susceptible am I to infections with my current numbers. What can I do and not do. (2) I hadn't had a blood test in 6 years (with work and taking care of my dad with dementia) waiting till I retired last January to take care of myself. I worry how long have I had MDS, how long into the timeline am I already.
Is it possible to have low risk MDS and not have it progress to AML for 10-15 years?