← Return to Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

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Profile picture for asarnesejr @asarnesejr

I'm just trying to grasp all of it right now. I was up most of the night unable to sleep.

Does anyone know of anyone or any statistics of someone in my condition (see above) that has not progressed? Meaning went on for years with low grade MDS with the following numbers:

WBC 1.5, Platelets 75, Neutrophil .7
No blasts in blood, 2% blasts in bone marrow.

without it progressing, and able to live a somewhat normal life?

I'm really scared.

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Replies to "I'm just trying to grasp all of it right now. I was up most of the..."

You may also want to change to an MDS Center of Excellence. You can find listings on mds-foundation.org. There is also a patient board where other people with MDS post info. The board is not as active as Mayo's but it is helpful to learn from others with the same disease.