← Return to Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

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This is good news! I know the ‘wait & see’ approach can be scary. But your MDS may remain low grade. If it progresses (that’s ‘if’) then there are treatments available. I’m intermediate MDS B2. Because of that, I will need a stem cell transplant after 4 rounds of Dacogen.
Take care of yourself & try to manage your anxiety. There is nothing we can magically do to change our blood numbers. But I believe in the mind-body connection. Our bodies respond better when our minds are at peace. Try & relax. Did your Dr say how often your blood will be monitored? Take comfort in knowing you will be monitored & thats all you need right now.

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Replies to "This is good news! I know the ‘wait & see’ approach can be scary. But your..."

I'm just trying to grasp all of it right now. I was up most of the night unable to sleep.

Does anyone know of anyone or any statistics of someone in my condition (see above) that has not progressed? Meaning went on for years with low grade MDS with the following numbers:

WBC 1.5, Platelets 75, Neutrophil .7
No blasts in blood, 2% blasts in bone marrow.

without it progressing, and able to live a somewhat normal life?

I'm really scared.