Any one with Ménière Disease ?

I do vestibular therapy . 1) to reduce calcium crystals in my ear canal I lob my head from side to side while laying down 2) do opposite limb coordination/activities to support my brain function with my balance and 3) I practice eye movement … all the way up, down, side to side.

Personally, I would not have had the steroid injections and certainly would not entertain getting Gentamycin injection in my ear! I would be getting a second opinion for sure or flying to LA to House Clinic which is the Ear Mecca to see a specialist. Meniere's is typically a diagnosis of exclusion

I’ve had Meniere’s for 8 years. All the typical symptoms and the drop attacks started about 2 years ago. That really changed my life - no driving, stay off hard floors when possible, limited social activities. I ended up in the ER twice for injuries. I’ve tried everything - started at Mayo Clinic in MN and went through a week long series of tests. At the end I was told they weren’t sure if it was Meniere’s or not and to come back in 6 months. I left very discouraged and then went to numerous ent’s, tried chiropractors including upper cervical, tried acupuncture, Betahistine, meclizine, and low sodium diet. Nothing helped. Finally went to the UT Southwestern Medical Center in Dallas. They started me with the steroid ear injections, those didn’t help. Then went to the gentamicin injections and had relief for 6 months when vertigo and drop attacks returned. The last resort is surgery so I did the labyrinthectomy surgery. I still have the tinnitus, which is not unusual, but no more vertigo or drop attacks. I’m an 80 year old male and, surprisingly, no after affects from the surgery other than slight balance issues which I’m working on daily and that’s improving significantly. The drop attacks are what motivated me to keep going on treatments until resolved. The risk was to great to not address it. I’m sure others have found relief with other methods so my only suggestion is to keep trying until you find what brings you relief. Best wishes to you.

I was diagnosed less than a year ago, have not nearly the severe symptoms you have endured. I have been diagnosed with a coupe of other (supposedly) chronic conditions too, and am here to say that you are an inspiration! Kudos to you for doing whatever it takes!! May this continue to work for you!

So sad to hear. I ‘had it’ for approximately five years? Insane vertigo attacks up to 5 hours immobilised on floor with non-stop ‘spinning’. Would sleep deeply for days afterwards. Also had many drop attacks. A very different sensation. My system would not tolerate medications so I had weekly Acupuncture treatment for a number of years. Ironically it was the acupuncturist that noticed a severe curve with my tongue. Said I’d had a severe stroke. A long story but after several ENT specialists eventually acknowledged my presentation of menieres didn’t appear to be ‘classic’ I delved further. Extremely difficult to do as I was perpetually exhausted. Turns out it was a cerebellar stroke. I have learnt to manage the side effects but have only praise for the acupuncturist. All the best for you.

@carair My dad came home from WWII and started having dizzy spells. He went to a doctor in Dallas when he was young, but did not want to have the surgery. His attacks came from time to time but not all the time. In his 70's they become very bad, and again he went to a doctor in Dallas--decades from the first time. The doctor said he could destroy the ear drum (he had very little hearing in that ear), and the dizzy spells would stop. That's what he did. I don't think he ever regretted it.