← Return to Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

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It's hard to distract yourself waiting for your diagnosis after a bone marrow biopsy and it will be even harder if you learn you have an aggressive type of leukemia. I remember feeling so numb initially. Sleep was fitful and nightmarish, food loses its taste. It felt like my body stopped making endorphins.
Once you learn the name of your disease, distracting yourself as others have mentioned is the key to finding peace. You need to research about your type of leukemia or other blood disease. In the beginning I didn't even know there were different types of leukemia. You have the benefit of the internet which I didn't have initially.
Take advantage of what you learn from your oncologist, and also blog on this site as well as others about your specific disease. Inspire is a useful site, Facebook has good medical group sites as well. You'll learn a lot from others with your specific disease. I lived near a major city which had conference's for specific diseases including CLL. Personally that didn't benefit me because I was in the early stages and not ready for treatment and learned that these conferences were sponsored by pharmaceutical firms promoting their drugs.
My bone marrow result showed I had Chronic Lymphocytic Leukemia, CLL and at the age of 50 I was told could expect 5 -15 years more. It took about 2 months to accept this reality. I was a zombie. Then as others mentioned I distracted myself with my hobby- landscape gardening. I stayed positive, became obsessively focused on my gardens where I could soak in nature, appreciating everything: clouds, trees, lush foliage and all glorious flowers I grew. I joined a garden club and gave tours of my gardens. I'd praised God, expressing gratitude for the good years I had. I treasured every moment with my husband and family. Then time passed. Now almost 26 years later here I am blogging . My CLL regressed back into the bone marrow about 10 years ago, it's just waiting there. My blood counts are perfectly normal, even the lymphocytes. I can't explain this, neither can my oncologists- nothing special about me, but I do believe that accepting my disease spurned me to be more grateful for the time I had left giving me a positive attitude. That said I do stress before each blood draw.
I never had pain, except during the horrific pain of the bone marrow test comparable to natural childbirth! I never experience more than ordinary fatigue. If you are in pain or exceedingly fatigued others may help with suggestions on that.
Again- once you get a diagnosis- research, blog and become an expert on your form of leukemia or blood disease. You will be your best advocate.

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Replies to "It's hard to distract yourself waiting for your diagnosis after a bone marrow biopsy and it..."

You are a perfect example of the power of positivity. When I was first diagnosed with MDS, I’ll admit I was scared & having many pity parties. Then, after praying a lot & asking friends & family to pray for me, I felt more at peace, thankful for the simplest of things. I went to chemo infusions looking forward to laughing with the nurses. I started writing in my journal again.
On August 15 I’ll be admitted to the hospital for a SCT. I am blessed & thankful for my donor & a second chance. I’m hoping to make new friends while there & hopefully help someone else going through the same thing.
Hugs,
Diane