Newly diagnosed and confused over treatment for lichen sclerosus
I've been diagnosed with lichen sclerosus. I have questions as to what is the best treatment: which steroid and at what dosage. My gynecologist initially prescribed mometasone cream 0.1% twice a week. This didn't really control the itching. My dermatologist is recommending clobetasol ointment 0.05% once a day for 2 months, followed by twice weekly forever. Itching, while not completely gone, is certainly more controlled after a week's treatment with the clobetasol. However, I'm a bit concerned over using it daily for 2 months. Can you please share what's worked for you? Can I expect to be using a steroid for life? To throw into the mix--I have long covid. Thank you for any help in navigating this.
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You'll want to buy Lisepten direct from the company. They don't sell anywhere else. It's best to get something like this direct so you know it hasn't been sitting in some warehouse. The folks at Lisepten say they make small batches so items are always new. Lisepten dot com. Easy to remember.
MD's are trained in pharmaceuticals so that will always be their first recommendation. Coconut will do no harm unless you are allergic. Most moisturizers have multiple ingredients and could be irritating.
Organic pure coconut oil is gentle with healing properties.
Hi I got officially diagnosed when I guilted my dermatolgist in to taking a plug of skin to do a biopsy. Up in till now neither my gynecologist and dermatologist were taking this seriously. Skin cancer runs in my family so any skin affliction I take seriously. At first they were handing the problem off to each other with the gynecologist telling me, with no diagnoses, to find a cream at the drug store to help the itching. Definitely changing gynecologist. So long story short I have been living with this for 5 years with literally no help. At first it was raging. So I started taking supplements to help the immune system and everything is in check except the five years of scarring. I take Vitamin C, Lysine, Tumeric, Ashwagandha, (Oregano Oil, Black Seed Oil, Garlic Extract, Elderberry Combo).
I have used EMU OIL for several years with almost immediate relief and after a few days it has disappeared
I'll try anything, LOL
Please keep me in the loop and let me know how this works for you. I don't know what I would do without Emu Oil. Wishing you well
Diagnosed with LS almost ten years ago. I started with the Clob but switched to Emuaid as I felt I didn’t want the side effects of the Clob. The Emuaid is a dream! I still use the Clob…VERY VERY little and maybe once monthly for just maintenance. Emuaid is worth every penny. My grandson had Hidradenitis Suppurativa. He applied the Emuaid every day, two to three times daily, The boils dried up and after two-three months were gone. He applies twice weekly for maintenance and nothing has come back. Miracle ointment!
@sap52203 Where did you learn about emuaid and is your doctor OK with it?
Using Clob “forever” was daunting considering the possible side effects. I ran across Emuaid while researching options. I started using it and at my first doctor appointment three months into using Emuaid, my doctor commented on how well the Clob was keeping the scarring down. Hmmmm so I told her I had not used it in the last three months as I had been using a product called Emuaid. I told her it also reduced the itching I was experiencing. She said she had no issue with me continuing on the Emuaid as everything looked good down there. I’ve been using it ever since…and will continue.
Recently had a UTI and saw a doctor in the nearby Urgent Care. I asked her to check my LS. She said she only saw a small white patch and that was all. 👍
I think I need a specialist who knows how to tx the lichen with an underlying Coup de Sabre (type of sclerotic skin). I’m in southern Ca Inland Empire and have spent almost 2 years until someone actually diagnosed my lesions. Not certain all we’re doing is the best treatment. Advise please!?