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Is anyone here taking Revlimid? If so please share with me

Blood Cancers & Disorders | Last Active: Nov 25, 2025 | Replies (75)
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Profile picture for montauk @montauk

I am diagnosed with 5q

I just started 5mg Revimid

My hemoglobin with 2 units of blood peaks at 9.

I get transfused when I hit about 6.5.

At 9.0 I feel pretty good and could be satisfied with that, but to date, on first month on 5 mg Revimid I cannot sustain that level.

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Replies to "I am diagnosed with 5q I just started 5mg Revimid My hemoglobin with 2 units of..."
jeffreykassover1 | @jeffreykassover1 | Sep 21, 2025

I have MDS with the 5q variant and another variant as well. Taking Remlivid for the second time... so far, no effect. Transfusions are given about regularly when I am below 7. Told to hang in there, but not seeing any results is frustrating.

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