Fat grafting or Botox to relief pain & tightness after treatment?

Posted by stephenrfleury @stephenrfleury, Mar 27 7:55am

I had radiation and chemo for SCC on the base of my tongue and a few lymph nodes. Has anyone had fat grafting or Botox injections to relieve pain and tightness? If yes, what are your about the effectiveness of the treatments.

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Thanks for that info. I feel the same way. No after radiation care offered .Not sure if that is something that even entered their minds. I'm pretty much doing my own investigation on the aftercare and what can be done. So thank you for any update or bit of information. It's very much appreciated.

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I believe fat grafting for post-radiation neck fibrosis is reasonably new. Besides that, for me the only thing available was PT with stretching exercises. My fibrosis made stretching reasonably useless.

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Profile picture for josk @josk

Hi Steve ... just like you I have never heard of or aware that botox or steroid injections helps with severe neck fibrosis (diagnosed in 2020, and have been living and adapting to speech impairments and swallowing issues - and turning my lifestyle 'upside-down' - where I tend to isolate myself due to 'slurring' and having to cough out/spit out food when stuck in my throat).
Managed to get an appt with Late Effects of Radiation Clinic in PMCC, Toronto - hope to get more info on this Botox procedure.

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For me the Botox injections have been used in concert with the fat grafting.

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Profile picture for steve1947s @steve1947s

Hi Josk,
I have a lead that Brigham & Womens Pain Management in Boston might have a course of treatment for my very painful fibrosis. I'll find out more tomorrow. The fact that after-radiation care lasting for years as needed wasn't offered by the hospital treating me really burns me up. Now, I have to search out my own diagnosis, determine the treatment needed, and find the provider. Good luck to you. Let me know if you want the B&W Pain Mgmt contact info.
Steve

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Hi Steve
Unfortunately, I reside in Toronto - and Boston is not viable.
I have an appt with the doctor at the Late Effects of Radiation Clinic in PMCC next week - and will take it from there.
I don't have pain in with my severe neck fibrosis - except for stiffness in neck and jaw areas (I do have myofascial therapy every two weeks and I do jaw and tongue exercises every day - in the hope that it will delay the deterioration).
Lately, I find that my swallowing is getting worse - in that I have to tilt my head backwards so that food or liquid does not come out through my nose, and also feel numbness in lower jaw, and also tend to drool more often.
In mid 2020 when I was diagnosed - I was told that these are the late effects of radiation - not getting my hopes up!! but .......
Take care !!

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Profile picture for josk @josk

Hi Steve ... just like you I have never heard of or aware that botox or steroid injections helps with severe neck fibrosis (diagnosed in 2020, and have been living and adapting to speech impairments and swallowing issues - and turning my lifestyle 'upside-down' - where I tend to isolate myself due to 'slurring' and having to cough out/spit out food when stuck in my throat).
Managed to get an appt with Late Effects of Radiation Clinic in PMCC, Toronto - hope to get more info on this Botox procedure.

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Hi Steve will you please update us on what PMCC says?
I amd many would love to see if there us help out there.
Thank you

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Profile picture for lilypilly @lilypilly

Hi Steve will you please update us on what PMCC says?
I amd many would love to see if there us help out there.
Thank you

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I didn't know what PMCC stands for and Google showed lots of choices. Help me out here

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Profile picture for stephenrfleury @stephenrfleury

I didn't know what PMCC stands for and Google showed lots of choices. Help me out here

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oops ... sorry - here goes .... Princess Margaret Cancer Centre, Toronto, Ontario, Canada (PMCC).

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