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Periodic Limb Movement Disorder

Sleep Health | Last Active: Aug 2 11:50pm | Replies (59)

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Profile picture for aureliorod @aureliorod

I was diagnosed with PLMD over 20 years ago. Don't remember scores (3 separate sleep studies), but they were high. I tried about 17 different drugs , but none were effective, except Clonazepam. I take a small dose (2mg) just before bed, & it works fine. Docs are reluctant to prescribe as it is highly addictive & may cause organ damage. I get checked by doc's every year & have had no such problems. Don't mind being addicted, because I can sleep--worth it! Hope this helps, & saves you the pain of going through a lot of the unnecessary side effects I went through. Good Luck!!

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Replies to "I was diagnosed with PLMD over 20 years ago. Don't remember scores (3 separate sleep studies),..."

Hi aureliorod,
Thanks for sharing your pain with me.
And 17 medications, wow that’s scary in itself. Was that through a number of different doctors? It’s great that Clonazepam works for you though and yeah I agree that’s a good addiction to have to have. How much better did your sleep feel and how long did it take to start working?
My younger sister started taking it last year for anxiety and it’s improved her sleep ( she just had trouble falling asleep). The interesting extra was that it cured her Raynauds syndrome also. I have it also so maybe I’ll get the double benefit also.
Sweet dreams