PMR at a young age

Posted by kcarman2383 @kcarman2383, Jul 29 10:54am

I have had symptoms since my late teen/early 20s and just recently was told it's PMR by the only doctor who would listen to me. I'm 41. Pred is helping but I've only been on a couple weeks. Is it possible to get a such a young age or am I being misdiagnosed here?

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Profile picture for jfannarbor @jfannarbor

I was first diagnosed at about 45. Symptoms were straight out of a text book that I never read. Pain across the shoulder and hip girdle for no reason with fatigue. Without doing any lab work the rheumatologist prescribed 10 mg prednisone and withing 6 hours I was a new man. The change was so obvious that my wife noticed it before I told what I did. That was 40 years ago and I have been on and off prednisone for all that time, mostly on. I have seen 5 rheumatologist during the 40 years of treatmnt with different treatments and diagnoses. Currently on Kevzara and down to 2.5 mg of prednisone. I also take Tylenol for pain.

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Your story gives me hope. I’ve been on Pred for over 10 years and nothing else has worked, I’m at 4 mg. All I hear is that I must get off Pred which led me to believe it would destroy me. The biologic’s haven’t helped and Kevzara had bad side effects so I consider Pred the only thing giving me quality of life. Thank you for sharing your 40 year journey, it gives me hope.

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