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Periodic Limb Movement Disorder
Sleep Health | Last Active: Aug 2 11:50pm | Replies (59)Comment receiving replies
Hello Aussieian,
I too have suffered from PLMD for over 35 years. Do you live close to a Mayo Clinic? If you are able to schedule an appointment with a sleep specialist at Mayo, they would complete a nerve test, and other testing to determine if it is truly PLMD.
I was diagnosed with RLS back then, when I knew after reading and researching, I had PLMD. It was the Mayo Sleep Specialist who diagnosed me with PLMD after listening to me, truly listening to me. I am taking a very small dose of buprenorphine that curbed the leg jerks at night, and at naps (when taken)
I had two sleep studies, one in 2015 and the other in 2023: both were inconsistent with the results. As we age the PLMD becomes worse, and if needed, I will take another sleep study.
Good luck with your journey at this terrible disease.
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Hi Vikkitennis,
Thanks for your quick reply.
I’m in Australia and currently seeing the Sleep clinic at the Flinders University here in South Australia. It’s slow going and a bit frustrating I’ll admit but I’m retired now and am steadily expanding my knowledge more on line and by getting different medical checks and seeing different specialists. I’ve known something wasn’t right about my sleep for a long time, but I had no obvious signs and no RLS. I just knew I shouldn’t feel so drained every day.
Also I never dream anymore like when I was younger ( when I would wake near a REM phase and recall the dream). My deep sleep is impacted and that’s what I’m hoping to improve once I start some meds under guidance of my sleep doctor. I’m yet to be impressed by either of the sleep doctors I’ve seen though.
Thanks again