Connect
← Return to Periodic Limb Movement Disorder
Discussion
Periodic Limb Movement Disorder
Sleep Health | Last Active: Aug 2 11:50pm | Replies (59)Comment receiving replies
Hi
I’m a newbie.
I have PLMD after 2 sleep studies ten years apart both showed it.
I’m interested in how many people suffer it and do they know their PLMD score from their sleep study?
I’m going through trials to try and improve my sleep quality with a sleep specialist.
I sleep no problem but the quality is poor as my Deep sleep is not good and nothing yet seems to improve it. So with PLMD, I don’t feel sleepy during the day, rather lethargic and low in energy. I get heaps of light sleep but wake up feeling lousy every day no matter how long I sleep or where I sleep or what activity I’ve done during the day or what supplements I’ve tried or what of the many sleep hygiene techniques I’ve tried.
I suspect there are millions of people like me who don’t know what a good sleep is because PLMD is not detected until you have a proper sleep study (Polysomnogram).
I had hoped Mayo Clinic would be a guiding light on PLMD.
Replies to "Hi I’m a newbie. I have PLMD after 2 sleep studies ten years apart both showed..."
Connect
Hello Aussieian,
I too have suffered from PLMD for over 35 years. Do you live close to a Mayo Clinic? If you are able to schedule an appointment with a sleep specialist at Mayo, they would complete a nerve test, and other testing to determine if it is truly PLMD.
I was diagnosed with RLS back then, when I knew after reading and researching, I had PLMD. It was the Mayo Sleep Specialist who diagnosed me with PLMD after listening to me, truly listening to me. I am taking a very small dose of buprenorphine that curbed the leg jerks at night, and at naps (when taken)
I had two sleep studies, one in 2015 and the other in 2023: both were inconsistent with the results. As we age the PLMD becomes worse, and if needed, I will take another sleep study.
Good luck with your journey at this terrible disease.