Does anyone have both Parkinsonism and Myasthenia Gravis?

Posted by Laurie J Van Roekel @laurievr, Jun 24, 2024

I was thought to have Myasthenia Gravis and so my neurologist sent me to Mayo to be tested. I was diagnosed with Parkinsonism instead. He seems skeptical, but has me taking Sinemet. It is too soon to tell if it works. Any ideas?

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@mymindnotyours

I have Parkinson’s and Rheumatoid Arthritis, I don’t know if this is something that might give you comfort. Knowing someone else has 2 diseases helps me feel not so alone.

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I am not sure why the two replies came as one. Yes, it is comforting when you can talk to someone who knows the terminology, symptoms, reactions. Parkinsons has so many levels of
symptoms and some of the ones from Parkinson's are also on MG's list.
In reference to the question about meds or lifestyle changes. Neither one of my Neurologists would own the drop head. They both said it was the others diseases that has that, as they were walking out the door. I am on many meds. Not sure if any help my neck. Aleve helps husband tried to make a brace for me. I know we spent thousands to try and find one we could adapt to my needs. Only 1 neurologist made effort to try and find me comfort. Of course, he got another position and did not take patients. We finally settled on a neck brace that race car drivers wear while driving. It had to get velcro in places and hubby added a chin holder. Looks funny but beats my chin on my chest.

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@jch2025va

I am not sure why the two replies came as one. Yes, it is comforting when you can talk to someone who knows the terminology, symptoms, reactions. Parkinsons has so many levels of
symptoms and some of the ones from Parkinson's are also on MG's list.
In reference to the question about meds or lifestyle changes. Neither one of my Neurologists would own the drop head. They both said it was the others diseases that has that, as they were walking out the door. I am on many meds. Not sure if any help my neck. Aleve helps husband tried to make a brace for me. I know we spent thousands to try and find one we could adapt to my needs. Only 1 neurologist made effort to try and find me comfort. Of course, he got another position and did not take patients. We finally settled on a neck brace that race car drivers wear while driving. It had to get velcro in places and hubby added a chin holder. Looks funny but beats my chin on my chest.

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Has either doctor suggested botox injections for the drooped head?

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@jtes

Has either doctor suggested botox injections for the drooped head?

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Well, I always thought when I was younger, I would get botox if I wanted to. But my MG dr,.said no, it could kill you. We have a problem with swallowing and chocking so since botox causes paralysis, it could close up my airway and I could die. Not a pretty thought.

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@jch2025va

Well, I always thought when I was younger, I would get botox if I wanted to. But my MG dr,.said no, it could kill you. We have a problem with swallowing and chocking so since botox causes paralysis, it could close up my airway and I could die. Not a pretty thought.

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I hope the neck brace helps.

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@jtes

I hope the neck brace helps.

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Thank you ++ It looks crazy on me and it is hot and scratchy but it does a good job. I can kinda look a person in the face. It is not perfect, but it was made from love.

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