Recurring Pneumonia after MAC
My husband was diagnosed with MAC in early 2024. He completed the year long treatment of 3 antibiotics. The day the told him it was clear from MAC he found out he had 2 different bacteria in his lungs including E.coli. Since being treated for MAC and the bacterial infection he has had pneumonia 3-4 times. It seems like every time he gets off of antibiotics a few weeks he ends up sick again. We just don’t feel like we’re getting much help from his pulmonologist or infectious disease doctor. He has been sick for about 5 years before being diagnosed (every time he got off antibiotics for a few months) he got bronchitis or pneumonia again. They found it after he was hospitalized with pneumonia and a Bronchoscopy was done. Can anyone give us advice on how to get someone who will help? Thank you.
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Thank you
Thank you scoop. I did call the info center from the link you sent me and a very nice moderator John helped me with my question plus he said to call him back if my doctor does not recommend her replacement. He will help me with the process. So thanks, and again I am so thankful for this online space and people who help each other despite having own problems.
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