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Recommendations on specific clinics for long COVID
Post-COVID Recovery & COVID-19 | Last Active: Mar 14, 2024 | Replies (63)Comment receiving replies
Need guidance. My wife had 1 covid vaccine 2.5 years ago. 6 months later she had stroke like symptoms but no stroke. Her symptoms are light headed, brain fog, tumors, left side body tingling, extreme tiredness, head pressure and racing heart. We have seen many doctors including neurologist with no diagnosis or treatment. They say it’s made up but they have witnessed the tumors. We believe this could be long COVID or vaccine related. We are looking for a doctor who isn’t afraid to diagnose that if that is it and treat if possible. We live in southern IN but will travel if need. Any advice?
Replies to "Need guidance. My wife had 1 covid vaccine 2.5 years ago. 6 months later she had..."
I subscribed to his channel on youtube.I only watch the ones pertaining to long covid that he does.IDK....out of all the others on youtube,his manner and thoroughness with 'reasons why' just clicked for me.
Do you need a Neurologist or Immunologist?
(I am trying to find “root cause” and not just medicate the symptoms.)
This article is why I'm now researching Specialist in Immunology. Also, I'm getting the feeling that I have exhausted the Neurologist options.
Google - gladstone In Patients with Long COVID, Immune Cells Don’t Follow the Rules
"People with long COVID have dysfunctional immune cells that show signs of chronic inflammation and faulty movement into organs, among other unusual activity, according to a new study by scientists at Gladstone Institutes and UC San Francisco (UCSF). "
Google - medrxiv Comparative Analysis of Long COVID and Post-Vaccination Syndrome
“Question What are the similarities and differences between long COVID and post-vaccination syndrome (PVS)?
Findings In this cross-sectional study of 682 individuals, machine learning models identified distinct symptoms between long COVID and PVS. Long COVID was characterized by brain fog, altered sense of smell, and shortness of breath, while PVS was associated with burning sensations, neuropathy, and numbness.
Meaning Although long COVID and PVS share overlapping symptoms, they have distinctive symptom profiles, suggesting potentially different underlying biological mechanisms. Understanding these differences can guide clinical diagnosis and targeted management, and inform further research into their distinct immune and biological pathways.”
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Couple of resources I've found...
Long Covid Alliance org - directory of long covid clinics (some old information)
Providers with Advanced Training Headaches/ Migraine
National Headache Foundation
headaches org resources healthcare-provider-finder
Scroll down -> United Council for Neurologic Subspecialties (UCNS) Certification in Headache Medicine (700 listed); and Advanced Qualification in Headache Medicine (AQH©) Certification (326 listed) - scroll to bottom select State and see who has the added certifications in your area.
It's a journey, best wishes on your journey!
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