Lichen Sclerosus: Any other women dealing with this disease?

I buy PURPLE EMU OIL on line. it is quite expensive but lasts many years in the fridge. I will never, ever be without it. It is tremendously healing and feels like silk when you appy it

Unfortunately, I swear the toilet paper isn't helping. HRT helps. I'm afraid of cortisone but. . .

I buy PURPLE EMU OIL on line. You can google it and quickly find distributors. It will keep in the fridge for years. I keep a small amount out and use it daily for LS and any difficult sore. It is wonderful!

Yes. It is rare. Unfortunately I’m one of the few. I’m 78 years old and I was diagnosed 13 years ago. It remained relatively symptomless except for the white patches. 5 years ago the inflammation, redness, dryness, pain and scarring began. I have been miserable. At best it is comfortable. At worst it is torture. Initially I was prescribed triamcinalone cream which is not even used for LSV. A better dermatologist has had me on Clobatezol which has been good but I still have flares. She does not want me using it long term so has been trying other creams and ointments. I can’t remember all the names but the best is Opzelura. Only a millionaire could afford the co-pay so my doctor has been supplying me with samples. The doctor prescribed Otezla to hit it internally. The side effects kept me from remaining on it. Occasionally she mentions methotrexate. I resist that because if side effects. All that being said I find Aquaphora Ointment to give relief. Because of comments on this blog I just ordered Strata MGT from Amazon. I know nothing about it but I’ll try anything.
I wish the best options for anyone suffering this dreaded disease.

Thank you!!!

I only use Lisepten, either the coconut or jojoba versions are what I choose. I haven't found that anything else works as well for me. Just Google the name and buy directly from them for the best price.

Yes, I have had LS for over a year now, using various creams, little relief.
I found a place in Pensacola FL that does a 3 day treatment involving laser treatment. I plan on contacting them when I return to FL in the fall.
I have read that laser treatment is not good for you, but at this point I am willing to pay the price to be symptom free. It has also affected my relationship with my spouse

I suffer from LS couple years i tried a lot of creams -ointmet-which is helps me when begin the ichting and the vaginal burning is : MOMETASONFUROAAT TEVA 1 mgr, Only to use very little amount and maximum 3 times a week ( Recomend my Dr.) because is one Cortisone

Yes I'm post menopause 10 yrs and thought it was just vaginal dryness soreness crazy itchy .. till my dr informed me it's lichen sclerosis
It's horrendous 😫

Yes I agree toilet paper is uncomfortable to use .. I use toilet wet wipes mostly then pat dry